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长期氧疗患者对便携式制氧机的体验及与健康相关的生活质量——一项横断面研究

LTOT Patients' Experience of a Portable Oxygen Unit and Health-Related Quality of Life-A Cross-Sectional Study.

作者信息

Möller Sebastian, Ivarsson Bodil, Nordström Lars-Åke, Johansson Anders

机构信息

Department of Information Technology and Biomedical Engineering, Region Skåne, Lasarettsgatan 37, 221 85 Lund, Sweden.

Department of Clinical Sciences, Lund University, 221 00 Lund, Sweden.

出版信息

Healthcare (Basel). 2020 Jun 23;8(2):182. doi: 10.3390/healthcare8020182.

Abstract

The purpose of the present study was to elucidate the experiences of long-term oxygen therapy (LTOT) patients with a portable oxygen unit and to describe the patients' self-assessed health-related quality of life (HRQoL). The study employed a prospective cross-sectional design. Data collection entailed two questionnaires, namely the MedTech20 (patients' experience of the medical device in four areas) and EQ-5D (HRQoL). The informants consisted of patients ( = 148) treated with such a medical device and that were registered in Skåne University Hospital's database, Medusa. In the domain the informant felt and expressed . Regarding , the responses did not indicate the device to , , or to a larger extent. The respondents did express a reduced sense of , with a minor effect on . With regards to , the responses indicated the product to provide . Overall, a strongly affected HRQoL ( EQ-VAS Md = 50 (IQR 36-70)) with strong correlation with EQ-5D was seen. Informants experienced the portable oxygen unit as reliable and safe to use while giving a sense of control over the disease itself. A minor impact on social participation was reported, except for a reduced sense of compromised integrity. The patients also reported a strongly reduced HRQoL.

摘要

本研究的目的是阐明长期氧疗(LTOT)患者使用便携式制氧机的体验,并描述患者自我评估的健康相关生活质量(HRQoL)。该研究采用前瞻性横断面设计。数据收集涉及两份问卷,即MedTech20(患者在四个方面对医疗设备的体验)和EQ-5D(健康相关生活质量)。信息提供者包括在斯科讷大学医院数据库Medusa中登记的使用这种医疗设备治疗的患者(n = 148)。在该领域,信息提供者感到并表达了……。关于……,回答并未表明该设备在更大程度上……、……、……或……。受访者确实表达了……感降低,对……有轻微影响。关于……,回答表明该产品提供了……。总体而言,观察到健康相关生活质量受到严重影响(EQ-VAS中位数 = 50(四分位间距36 - 70)),且与EQ-5D有很强的相关性。信息提供者认为便携式制氧机可靠且使用安全,同时能让人对疾病本身有掌控感。报告显示对社会参与有轻微影响,除了受损的完整性感觉有所降低。患者还报告健康相关生活质量大幅下降。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ce92/7349300/8f4629d27e7e/healthcare-08-00182-g001.jpg

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