Möllerberg Marie-Louise, Langegård Ulrica, Ohlsson-Nevo Emma, Fransson Per, Johansson Birgitta, Ahlberg Karin, Sjövall Katarina
RI.SE (Research Institute of Sweden) Lund Sweden.
Institute of Health and Care Sciences Sahlgrenska Academy University of Gothenburg Gothenburg Sweden.
Nurs Open. 2020 Apr 14;7(4):1157-1163. doi: 10.1002/nop2.490. eCollection 2020 Jul.
To illuminate the experience of an altered social context for patients with primary brain tumours living away from home while undergoing proton beam therapy.
A descriptive, qualitative cross-sectional interview study.
Nineteen patients were interviewed between December 2015-August 2016, either during ( = 7) or before and after ( = 12) their proton beam therapy. A hermeneutical analysis was performed.
Participants made adjustments to achieve control and well-being during the treatment period. The analysis also revealed two interrelated patterns that helped participants adjust: being part of the family from a distance and seeking affinity.
It is important that patients receiving treatment far from home find a way to remain a part of their family and find affinity in the altered social context. Health professionals can prepare patients for the treatment period and can implement interventions to promote well-being for both patients and their relatives.
阐明原发性脑肿瘤患者在离家接受质子束治疗期间，社会环境改变的经历。
一项描述性、定性的横断面访谈研究。
2015年12月至2016年8月期间，对19名患者进行了访谈，其中7名患者在质子束治疗期间接受访谈，12名患者在治疗前后接受访谈。进行了解释学分析。
参与者在治疗期间进行了调整，以实现控制感和幸福感。分析还揭示了两种相互关联的模式，帮助参与者进行调整：远距离成为家庭的一部分和寻求亲密感。
离家接受治疗的患者找到一种方式，在改变的社会环境中仍然成为家庭的一部分并找到亲密感，这很重要。卫生专业人员可以帮助患者为治疗期做好准备，并可以实施干预措施，以促进患者及其亲属的幸福感。
