Quintana Rosana, Fernández Sofía, Orzuza Stella M, Silvestre Adriana M R, Bensi Ana, Goñi Mario, Iglesias Paola, Mathern Nora, García-Bianco Vanina, Honeri Andrés, Pons-Estel Bernardo A, Valdata Marcela, Peláez-Ballestas Ingris
Centro Regional de Enfermedades Autoinmunes y Reumáticas (GO-CREAR), Rosario, Argentina.
Centro de Estudios Aplicados a Problemáticas Socio-culturales (CEAPROS), Facultad de Humanidades y Artes, Universidad Nacional de Rosario, Argentina.
Reumatol Clin (Engl Ed). 2020 Jun 26. doi: 10.1016/j.reuma.2020.04.016.
Rheumatoid arthritis (RA) is a chronic disease which impacts patients' quality of life. The prevalence of RA in the qom population was 2.4% and represented an aggressive and disabling disease. The study goal was to describe the experience of the indigenous qom community individual suffering from RA, along with their experience with the local health care system in the city of Rosario, Santa Fe, Argentina.
Qualitative Study using techniques of participant observation and semi-structured interviews; following a guideline developed by a multidisciplinary research group comprising anthropologists, rheumatologists, nurses, and psychologists. A triangulation strategy was implemented for the analysis.
A total of 33 interviews were conducted in 29 individuals with RA. The results showed a «normalization» of their symptoms and of their limitations in performing daily tasks. The individual relationships with the local health care system was complex and limited in several aspects (e.g. access to health care, continuity of treatment, complexity of medical care pathway and lack of cultural competence).
RA is a disease that has a negative impact on the daily lives of the qom people living in Rosario. Improving the relationship between this population and the local health care system as well as the implementation of multidisciplinary work should be priorities.
类风湿性关节炎（RA）是一种影响患者生活质量的慢性疾病。科姆人群中RA的患病率为2.4%，是一种侵袭性且致残的疾病。本研究的目的是描述阿根廷圣菲省罗萨里奥市科姆土著社区中患RA的个体的经历，以及他们与当地医疗保健系统打交道的经历。
采用参与观察和半结构化访谈技术进行定性研究；遵循由人类学家、风湿病学家、护士和心理学家组成的多学科研究小组制定的指导方针。分析采用了三角验证策略。
对29名患RA的个体进行了共33次访谈。结果显示，他们的症状以及日常任务执行方面的限制呈现出“常态化”。个体与当地医疗保健系统的关系复杂，在几个方面存在局限（如获得医疗服务的机会、治疗的连续性、医疗护理途径的复杂性以及缺乏文化能力）。
RA对居住在罗萨里奥的科姆人的日常生活有负面影响。改善这一人群与当地医疗保健系统之间的关系以及开展多学科工作应成为优先事项。
