Division of Hematology-Oncology, Connecticut Children's Medical Center, Hartford, Connecticut, USA.
Center for Cancer and Blood Disorders, Connecticut Children's Medical Center, Hartford, Connecticut, USA.
J Psychosoc Oncol. 2020 Sep-Oct;38(5):573-591. doi: 10.1080/07347332.2020.1769795. Epub 2020 Jun 30.
To date, there is limited study of the end of treatment (EOT) transition experiences and needs of children/adolescents with cancer and their parents.
A systematic search identified primary research focusing on EOT, describing child, adolescent, and parental perceptions, experiences, and needs during this transition period. Of 170 articles identified, 22 met inclusion criteria.
DATA EVALUATION/SYNTHESIS: Studies were appraised for level and quality of evidence. Narrative synthesis was performed to extract themes and integrate the literature. Family members' perceived needs, factors influencing the EOT experience, and consequences of this transition emerged as themes.
Uncertainty and heightened anxiety at EOT highlight the need for increased education and support for family members. Family functioning and distress influence the EOT experience, with variable effects on each family member. There is a call for individualized interventions to promote coping and positive outcomes.
迄今为止，针对癌症儿童和青少年及其父母在治疗结束（EOT）过渡期间的体验和需求，相关研究十分有限。
系统检索确定了主要的研究重点是 EOT，描述了在此过渡期间儿童、青少年和父母的感知、体验和需求。在确定的 170 篇文章中，有 22 篇符合纳入标准。
数据评估/综合：评估了研究的证据水平和质量。进行了叙事综合以提取主题并整合文献。主题包括家庭成员感知到的需求、影响 EOT 体验的因素以及过渡的后果。
EOT 时的不确定性和高度焦虑凸显了增加对家庭成员教育和支持的必要性。家庭功能和困扰会影响 EOT 体验，对每个家庭成员的影响不同。需要个性化干预措施来促进应对和积极结果。
