我想玩耍：脑瘫儿童讲述他们参与休闲活动的障碍与促进因素的经历
I Want to Play: Children With Cerebral Palsy Talk About Their Experiences on Barriers and Facilitators to Participation in Leisure Activities.
作者信息
Longo Egmar, Regalado Isabelly Cristina Rodrigues, Galvão Elida Rayane Viana Pinheiro, Ferreira Haryelle Nárima Confessor, Badia Marta, Baz Begonã Orgaz
机构信息
Department of Health of Children (Dr Longo), Graduate Program in Rehabilitation Sciences (Ms Galvão), and Graduate Program in Public Health (Ms Ferreira), Federal University of Rio Grande do Norte, Santa Cruz, Brazil; Graduate Program of Physiotherapy (Ms Regalado), Federal University of Rio Grande do Norte, Natal, Brazil; Institute on Community Integration (INICO), Faculty of Psychology (Dr Badia), University of Salamanca, Salamanca, Spain; Faculty of Psychology (Dr Baz), University of Salamanca, Salamanca, Spain.
出版信息
Pediatr Phys Ther. 2020 Jul;32(3):190-200. doi: 10.1097/PEP.0000000000000719.
PURPOSE
To explore how children with cerebral palsy (CP) experience participation in leisure activities and to describe the environmental barriers and facilitators.
METHODS
Sixteen children with cerebral palsy aged 7 to 17 years participated in 3 focus groups. Data were analyzed thematically by 3 researchers on the basis of the International Classification of Functioning, Disability and Health.
RESULTS
A total of 38 International Classification of Functioning, Disability and Health categories were identified (4 linked to Body functions; 2 linked to Body structures; 8 linked to Activities & Participation, and 24 to Environmental factors: 10 facilitators and 14 barriers). The most mentioned categories were Voluntary movement control functions, Functions related to gait pattern, Structure of upper arm, Recreation and leisure, Nuclear family and finally, and Individual attitudes of acquaintances.
CONCLUSIONS
The main barriers identified by children with cerebral palsy highlight aspects of the physical, social, and attitudinal environment that could be modified to enhance participation in leisure activities.
目的
探讨脑瘫患儿参与休闲活动的体验，并描述环境障碍和促进因素。
方法
16名7至17岁的脑瘫患儿参加了3个焦点小组。3名研究人员根据《国际功能、残疾和健康分类》对数据进行了主题分析。
结果
共确定了38个《国际功能、残疾和健康分类》类别（4个与身体功能相关；2个与身体结构相关；8个与活动和参与相关，24个与环境因素相关：10个促进因素和14个障碍因素）。提及最多的类别是自主运动控制功能、与步态模式相关的功能、上臂结构、娱乐和休闲、核心家庭，最后是熟人的个人态度。
结论
脑瘫患儿确定的主要障碍突出了身体、社会和态度环境中可加以改变以增强休闲活动参与度的方面。
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