Marques Janice Souza, Regalado Isabelly Cristina, Galvão Élida Rayanne Viana Pinheiro, Ferreira Haryelle Náryma, Longo Egmar, Lindquist Ana Raquel Rodrigues
Department of Physical Therapy, Federal University of Rio Grande do Norte, 59082-080 Natal, Brazil.
J Rehabil Med. 2021 Jan 1;53(1):jrm00136. doi: 10.2340/16501977-2768.
To understand the perception of children with disabilities and their families regarding factors that interfere with participation in leisure activities in Brazil.
This qualitative study included 14 focus groups, involving a total of 80 participants (40 children with disabilities and 40 family members). Discus-sions were recorded and transcribed. Coding was based on the International Classification of Functioning Disability and Health, following linking rules.
A total of 80 individuals participated in the study. For parents and children the most-cited barriers to participation in leisure activities were relat-ed to environmental factors. For children, the main barriers were the attitudes of their nuclear family, acquaintances, and friends. Access to products and technology for personal mobility were also important obstacles. For them, support from immediate family was both a facilitator and barrier. Other barriers identified by family members were open-space planning services and assets. As facilitators, the atti-tudes and support of people in positions of authority also were reported by this group.
For parents and children, most disabling barriers were related to environmental factors, such as access to products and technology, support, and attitudes. Some differences in perception were observed between comments from children and parents; for example, regarding barriers due to immediate family. Parents showed greater awareness of barriers and facilitators to participation in leisure activities.
了解巴西残疾儿童及其家庭对影响参与休闲活动因素的看法。
这项定性研究包括14个焦点小组,共有80名参与者(40名残疾儿童和40名家庭成员)。讨论内容进行了录音和转录。编码基于《国际功能、残疾和健康分类》,遵循关联规则。
共有80人参与了该研究。对家长和儿童而言,参与休闲活动最常被提及的障碍与环境因素有关。对儿童来说,主要障碍是其核心家庭成员、熟人及朋友的态度。获得用于个人出行的产品和技术也是重要障碍。对他们而言,直系亲属的支持既是促进因素也是障碍。家庭成员指出的其他障碍是开放空间规划服务和资产。作为促进因素,该群体还提到了权威人士的态度和支持。
对家长和儿童来说,大多数致残障碍与环境因素有关,如获得产品和技术、支持以及态度。在儿童和家长的看法之间观察到一些差异;例如,关于直系亲属造成的障碍。家长对参与休闲活动的障碍和促进因素有更高的认识。