Faculty of Kinesiology, Sport, and Recreation, University of Alberta, Edmonton, Alberta, Canada.
J Lesbian Stud. 2021;25(3):163-181. doi: 10.1080/10894160.2020.1778849. Epub 2020 Jul 1.
Care is a dirty word for many in our communities. "Caregiving" has become a euphemism for often-indifferent, under-funded labor that is done to our bodies to (barely) enable our continued survival. Care is a dirty word in many of our leftist-feminist communities. Care work is a classification of highly gendered and racialized labor that remains largely unpaid, underpaid, and deeply devalued. Care is a dirty word in our Mad, disability, queer activist communities. "Taken into care" often refers to indefinite confinement, forced extraction from communities and families, and the removal of one's right to self-determination. Is care even worth reclaiming? In this creative duo-ethnography, a Mad fat femme and a crip ill non-binary queerdo wander through various moments when care has most impacted our lives, our relationships, and our communities. We have each held one another with care on the precipice of dying. Our bodies have shouldered the love-labor of care in the most intimate, exigent, and banal of moments: consensual and playful medication reminders, postsurgery tampon changing, literally squeezing out another's breath to stay alive-and then repeating-hundreds of times an evening. We have also experienced care that was much too careful, and anything but full of care. We have shared care promiscuously with our crip and Mad (arts) communities in ways that have been life affirming, life changing, sometimes life making, other times life threatening. Through this wandering with ideas, moments, and communities, we reflect upon multiple dimensions of Mad, queer, crip care. Whom is the caring for? What is our care about? And how can our care be given or giving, taken or shared, offered, enabled, and co-created with flourish?
在我们的许多社区中，“关怀”是一个肮脏的词。“照顾”已成为一个委婉语，指的是通常漠不关心、资金不足的劳动，这些劳动是为了我们的身体而进行的，以使我们勉强能够继续生存。在我们许多左派女权主义社区中，关怀是一个肮脏的词。关怀工作是一种高度性别化和种族化的劳动分类，这种劳动基本上是无偿的、低薪的，而且被严重低估。在我们的疯癫、残疾、酷儿激进主义社区中，关怀是一个肮脏的词。“被照顾”通常指的是无限期监禁、被迫从社区和家庭中被剥夺、以及被剥夺自我决定的权利。关怀是否值得重新获得？在这部创意双人民族志中，一个疯狂肥胖的女性和一个残疾的非二元酷儿漫步于关怀对我们的生活、人际关系和社区产生最大影响的时刻。我们彼此在濒临死亡的边缘给予关怀。我们的身体在最亲密、最迫切和最平凡的时刻承担了爱的劳动：体贴地提醒对方按时服药、手术后更换卫生棉条，甚至在对方生命垂危时为其进行人工呼吸，并在数百次的夜晚中反复进行。我们也经历过过于小心、毫不关心的关怀。我们与残疾和疯癫（艺术）社区滥用地分享关怀，这种关怀有时能让人感到生命的肯定、改变，有时则能让人感到生命的威胁。通过这种对思想、时刻和社区的漫步，我们反思了疯癫、酷儿、残疾关怀的多个维度。关怀的对象是谁？我们的关怀是什么？我们的关怀如何给予或接受、分享、提供、使能和共同创造？
