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评估儿童心理社会和精神健康障碍中的生活质量:对一般健康相关生活质量测量方法的全面概述与评价

Assessing quality of life in psychosocial and mental health disorders in children: a comprehensive overview and appraisal of generic health related quality of life measures.

作者信息

Mierau Jochen O, Kann-Weedage Daphne, Hoekstra Pieter J, Spiegelaar Lisan, Jansen Danielle E M C, Vermeulen Karin M, Reijneveld Sijmen A, van den Hoofdakker Barbara J, Buskens Erik, van den Akker-van Marle M Elske, Dirksen Carmen D, Groenman Annabeth P

机构信息

Faculty of Economics and Business, University of Groningen, Groningen, The Netherlands.

Aletta Jacobs School of Public Health, Groningen, The Netherlands.

出版信息

BMC Pediatr. 2020 Jul 3;20(1):329. doi: 10.1186/s12887-020-02220-8.

DOI:10.1186/s12887-020-02220-8
PMID:32620157
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7333319/
Abstract

BACKGROUND

Mental health problems often arise in childhood and adolescence and can have detrimental effects on people's quality of life (QoL). Therefore, it is of great importance for clinicians, policymakers and researchers to adequately measure QoL in children. With this review, we aim to provide an overview of existing generic measures of QoL suitable for economic evaluations in children with mental health problems.

METHODS

First, we undertook a meta-review of QoL instruments in which we identified all relevant instruments. Next, we performed a systematic review of the psychometric properties of the identified instruments. Lastly, the results were summarized in a decision tree.

RESULTS

This review provides an overview of these 22 generic instruments available to measure QoL in children with psychosocial and or mental health problems and their psychometric properties. A systematic search into the psychometric quality of these instruments found 195 suitable papers, of which 30 assessed psychometric quality in child and adolescent mental health.

CONCLUSIONS

We found that none of the instruments was perfect for use in economic evaluation of child and adolescent mental health care as all instruments had disadvantages, ranging from lack of psychometric research, no proxy version, not being suitable for young children, no age-specific value set for children under 18, to insufficient focus on relevant domains (e.g. social and emotional domains).

摘要

背景

心理健康问题常出现在儿童和青少年时期,会对人们的生活质量(QoL)产生不利影响。因此,对临床医生、政策制定者和研究人员来说,充分衡量儿童的生活质量非常重要。通过本次综述,我们旨在概述适用于心理健康问题儿童经济评估的现有通用生活质量衡量方法。

方法

首先,我们对生活质量工具进行了元综述,确定了所有相关工具。接下来,我们对所确定工具的心理测量特性进行了系统综述。最后,结果总结在一个决策树中。

结果

本综述概述了这22种可用于衡量心理社会和/或心理健康问题儿童生活质量的通用工具及其心理测量特性。对这些工具的心理测量质量进行的系统搜索发现了195篇合适的论文,其中30篇评估了儿童和青少年心理健康方面的心理测量质量。

结论

我们发现,没有一种工具完全适用于儿童和青少年心理健康护理的经济评估,因为所有工具都有缺点,包括缺乏心理测量研究、没有代理版本、不适合幼儿、没有为18岁以下儿童设定特定年龄的值集,到对相关领域(如社会和情感领域)的关注不足。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fc73/7333319/b87dad4ffdd5/12887_2020_2220_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fc73/7333319/86dc8c951920/12887_2020_2220_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fc73/7333319/9c0be0f9fb7f/12887_2020_2220_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fc73/7333319/b87dad4ffdd5/12887_2020_2220_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fc73/7333319/86dc8c951920/12887_2020_2220_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fc73/7333319/9c0be0f9fb7f/12887_2020_2220_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fc73/7333319/b87dad4ffdd5/12887_2020_2220_Fig3_HTML.jpg

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