The University of Pennsylvania School of Nursing, Philadelphia, Pa; The University of Pennsylvania Perelman School of Medicine, Philadelphia, Pa.
The University of Pennsylvania School of Nursing, Philadelphia, Pa; The University of Pennsylvania Perelman School of Medicine, Philadelphia, Pa.
Nurs Outlook. 2020 Nov-Dec;68(6):720-726. doi: 10.1016/j.outlook.2020.04.011. Epub 2020 Jul 2.
Sensor-based technologies are used today in clinical practice, research, and for monitoring people's health in homes across the United States. Although the increasing growth and complexity of such technologies promises both direct and indirect benefits, significant ethical concerns are raised. We discuss several of these concerns, particularly those that arise in clinical research and outline ethical considerations that pertain to the concept of informed consent, participants' understanding of risks and benefits and the need for tailored and accessible information that will enable participants to fully understand research implications. Balancing the benefits with the potential risks of advanced information technology will require ethically astute researchers who can address the challenges that might arise while advancing knowledge with innovation that can improve the lives of patients and families.
基于传感器的技术如今在美国的临床实践、研究以及家庭健康监测中得到了应用。尽管这些技术的日益增长和复杂性带来了直接和间接的好处，但也引发了重大的伦理问题。我们讨论了其中的一些问题，特别是在临床研究中出现的问题，并概述了与知情同意概念相关的伦理考虑因素，包括参与者对风险和收益的理解，以及提供量身定制和易于获取的信息的必要性，以帮助参与者充分理解研究的影响。在平衡先进信息技术的潜在风险和收益时，需要有具备伦理敏感性的研究人员，他们能够应对可能出现的挑战，同时通过创新来推进知识，从而改善患者和家庭的生活。
