Ransmayr Gerhard
Fortschr Neurol Psychiatr. 2020 Sep;88(9):567-572. doi: 10.1055/a-1120-8567. Epub 2020 Jul 5.
Parkinson patients suffering from disease progression become increasingly dependent on personal care, which is mostly provided by female family members. Burden of care correlates with severity of motor impairment, neurocognitive and neuropsychiatric symptoms, behavioral abnormalities, autonomic nervous system disorders, impairment of micturition, sleep, and dependence. Caregiver burden also results from restrictions in time for personal matters, family, leisure and social activities, occupational limits, costs, lack of social support and impairment of sleep, depression, and emotional and other health problems of the carer (such as depression and anxiety). Caregivers at risk of caregiver burden need to be identified in time in order to provide information and adequate personal, psychological and financial support.
帕金森病患者病情进展后对个人护理的依赖程度越来越高，而护理工作大多由女性家庭成员承担。护理负担与运动障碍的严重程度、神经认知和神经精神症状、行为异常、自主神经系统紊乱、排尿障碍、睡眠障碍以及依赖程度相关。护理人员的负担还源于个人事务、家庭、休闲和社交活动时间受限、职业限制、费用、缺乏社会支持以及护理人员的睡眠障碍、抑郁和情绪及其他健康问题（如抑郁和焦虑）。需要及时识别有护理负担风险的护理人员，以便提供信息以及充分的个人、心理和经济支持。
