Department of Neurology II, MedCampus III, Kepler University Hospital, Johannes Kepler University, Medical Faculty, Krankenhausstraße 9, 4020, Linz, Austria.
Wien Med Wochenschr. 2021 Sep;171(11-12):282-288. doi: 10.1007/s10354-021-00844-8. Epub 2021 May 5.
A substantial number of neurological diseases lead to chronic impairment of activities of daily living (ADL) and physical or mental dependence. In Austria, homecare is provided mostly by female family members. Moreover, mainly female personnel, in the majority from southern and eastern European countries, contributes to care. Dependence and need for care vary between neurological diagnoses and accompanying diseases. Caregiver burden (CB) depends on patient- and caregiver-related and external factors, such as integrity of a family network, spatial resources, and socioeconomic factors. Depending on the neurological diagnosis, disease severity, and behavioral impairment and psychiatric symptoms, caregivers (CG) are at a significant risk of mental and somatic health problems because of limitations in personal needs, occupational and social obligations, financial burden, and restricted family life and leisure. Subjective and objective CB needs to be assessed in time and support should be provided on an individual basis. Recently, COVID-19 has caused additional multifactorial distress to dependent patients and informal and professional CG.
大量神经疾病导致日常生活活动(ADL)受损和身体或精神依赖。在奥地利,家庭护理主要由女性家庭成员提供。此外,主要是来自南欧和东欧国家的女性人员为护理工作做出贡献。神经疾病诊断和伴随疾病的不同导致依赖性和护理需求的不同。护理者负担(CB)取决于患者和护理者相关因素以及外部因素,例如家庭网络的完整性、空间资源和社会经济因素。根据神经疾病诊断、疾病严重程度以及行为障碍和精神症状,由于个人需求、职业和社会义务、经济负担以及受限的家庭生活和休闲的限制,护理者(CG)存在严重的心理健康和躯体健康问题的风险。主观和客观的 CB 需要及时评估,并应根据个人情况提供支持。最近,COVID-19 给依赖患者和非正式及专业 CG 带来了额外的多因素困扰。