尼日利亚翁多州镰状细胞贫血青少年的生活质量
Quality of life of adolescents living with sickle cell anaemia in Ondo State, Nigeria.
作者信息
Faremi Funmilola Adenike, Olawatosin Oyeninhun Abimbola
机构信息
Department of Nursing Science, Obafemi Awolowo University, Ile-Ife, Nigeria.
Department of Nursing, University of Ibadan, Ibadan, Nigeria.
出版信息
Pan Afr Med J. 2020 Apr 15;35:124. doi: 10.11604/pamj.2020.35.124.19082. eCollection 2020.
INTRODUCTION
This study assessed the level of knowledge and quality of life of adolescents living with sickle cell disease (SCD) and their quality of life.
METHODS
This study utilized descriptive research design. The study was conducted in two secondary level hospitals with functional SCD clinic in Ondo State. One hundred and four (104) adolescents participated in the study. Their consents were sought and gained.
RESULTS
Results showed that more males (63.5%) participated in the study. The mean age of the participants was 15.26±3.09 years. More than half (62.5%) of the participants that participated in the study had SCD crisis within six months. The mean SCD knowledge of participants in the study was 22.12±2.76, while 15.4% of the participants had good knowledge of SCD and Only 13(12.5%) have high quality of life. Also, the mean score of the participants on the quality of life scale was 39.50±6.47.
CONCLUSION
Knowledge of adolescents with SCD that participated in the study was relatively low and their quality of life moderate. Effort should therefore, geared towards improving their knowledge about SCD and providing supportive care that will improve their quality of life.
引言
本研究评估了患有镰状细胞病（SCD）的青少年的知识水平、生活质量。
方法
本研究采用描述性研究设计。该研究在翁多州两家设有功能性SCD诊所的二级医院进行。104名青少年参与了该研究。已征求并获得他们的同意。
结果
结果显示，参与研究的男性较多（63.5%）。参与者的平均年龄为15.26±3.09岁。参与研究的参与者中超过一半（62.5%）在六个月内发生过SCD危机。研究中参与者的SCD知识平均分为22.12±2.76，而15.4%的参与者对SCD有良好的了解，只有13人（12.5%）生活质量较高。此外，参与者在生活质量量表上的平均得分为39.50±6.47。
结论
参与研究的患有SCD的青少年知识水平相对较低，生活质量中等。因此，应努力提高他们对SCD的认识，并提供支持性护理以改善他们的生活质量。
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