Richards Dawn P, Birnie Kathryn A, Eubanks Kathleen, Lane Therese, Linkiewich Delane, Singer Lesley, Stinson Jennifer N, Begley Kimberly N
Chronic Pain Network, McMaster University, Hamilton, Ontario Canada.
Five02 Labs Inc, Toronto, Ontario Canada.
Res Involv Engagem. 2020 Jul 2;6:38. doi: 10.1186/s40900-020-00213-6. eCollection 2020.
The Strategy for Patient-Oriented Research Chronic Pain Network was founded in 2016 and is a patient-oriented research network funded by the Canadian Institutes of Health Research. The Network incorporates patient partners throughout its governance and operations meaning that patient partners may contribute to research projects in ways that warrant scientific authorship as defined by the International Committee of Medical Journal Editors. The Network did a brief informal review of guidance on patient authorship in 2019, but could not find any practical documentation to guide its members on this topic. Note the term patient partner here refers to a patient (or caregiver or other person with lived experience) who is a partner or collaborator on a research team. This guidance does not address patients as participants in a research study. This guidance has been co-written by a group of researchers and patient partners of the Chronic Pain Network in an effort to address this gap. It is intended for both researchers and patient partner audiences. This guidance is meant to facilitate conversations between researchers and patient partners about authorship and/or acknowledgement regarding research projects on which they collaborate. While the overall principles of academic authorship and acknowledgement remain unchanged, nuances for interpreting these principles through the lens of patient engagement or patient-oriented research is provided. Teams that carry out patient-oriented research projects will require different preparation to empower all team members (researchers and patient partners) to discuss authorship and acknowledgement. To facilitate these conversations, we have included an overview of the scientific publishing process, explanation of some common terms, and sets of considerations are provided for both patient partners and researchers in determining the range of team member contribution from acknowledgement to authorship. Conversations about authorship can be difficult, even for established research teams. This guidance, and the resources discussed within it, are provided with the intention of making these conversations easier and more thoughtful.
以患者为导向的研究慢性疼痛网络战略成立于2016年，是一个由加拿大卫生研究院资助的以患者为导向的研究网络。该网络在其治理和运营过程中纳入了患者合作伙伴，这意味着患者合作伙伴可以以符合医学期刊编辑国际委员会所定义的科学作者身份的方式为研究项目做出贡献。该网络在2019年对患者作者身份的指导方针进行了简短的非正式审查，但未能找到任何实用文件来指导其成员处理这个问题。请注意，这里的“患者合作伙伴”一词指的是作为研究团队的合作伙伴或合作者的患者（或护理人员或其他有实际经验的人）。本指南不涉及作为研究参与者的患者。本指南由慢性疼痛网络的一组研究人员和患者合作伙伴共同撰写，旨在填补这一空白。它适用于研究人员和患者合作伙伴这两个受众群体。本指南旨在促进研究人员和患者合作伙伴之间就他们合作的研究项目的作者身份和/或致谢进行对话。虽然学术作者身份和致谢的总体原则保持不变，但提供了从患者参与或患者导向研究的角度解释这些原则的细微差别。开展以患者为导向的研究项目的团队需要不同的准备，以使所有团队成员（研究人员和患者合作伙伴）能够讨论作者身份和致谢。为了促进这些对话，我们提供了科学出版过程的概述、一些常用术语的解释，并为患者合作伙伴和研究人员提供了一系列考虑因素，以确定团队成员从致谢到作者身份的贡献范围。关于作者身份的对话可能很困难，即使对于成熟的研究团队也是如此。提供本指南以及其中讨论的资源，旨在使这些对话更容易、更有深度。
