Santana Maria J, Duquette D'Arcy, Fairie Paul, Nielssen Ingrid, Bele Sumedh, Ahmed Sadia, Barbosa Tiffany, Zelinsky Sandra
Department of Pediatrics, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
Department of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
Res Involv Engagem. 2022 Sep 7;8(1):49. doi: 10.1186/s40900-022-00384-4.
Albertans4HealthResearch, supported by the Alberta Strategy for Patient-Oriented Research Patient Engagement Team, hosted a virtual round table discussion to develop a list of considerations for successful partnerships in patient-oriented research. The group, which consists of active patient partners across the Canadian province of Alberta and some research staff engaged in patient-oriented research, considered advice for academic researchers on how to best partner with patients and community members on health research projects. The group identified four main themes, aligned with the national strategy for patient-oriented research (SPOR) patient engagement framework, highlighting important considerations for researchers from the patient perspective, providing practical ways to implement SPOR's key principles: inclusiveness, support, mutual respect, and co-building. This commentary considers the process behind this engagement exercise and offers advice directly from active patient research partners on how to fulfill the operational patient engagement mandate. Academic research teams can use this guidance when considering how to work together with patient partners and community members.
由艾伯塔省患者导向型研究患者参与团队支持的“艾伯塔省健康研究”组织举办了一场虚拟圆桌讨论，以制定一份关于患者导向型研究中成功合作的考量因素清单。该小组由加拿大艾伯塔省的活跃患者合作伙伴以及一些从事患者导向型研究的研究人员组成，他们为学术研究人员提供了关于如何在健康研究项目中与患者和社区成员最佳合作的建议。该小组确定了四个主要主题，与国家患者导向型研究战略（SPOR）患者参与框架相一致，从患者角度突出了研究人员的重要考量因素，提供了实施SPOR关键原则（包容性、支持、相互尊重和共同构建）的实用方法。本评论考虑了此次参与活动背后的过程，并直接提供了活跃患者研究合作伙伴关于如何履行患者参与运营任务的建议。学术研究团队在考虑如何与患者合作伙伴和社区成员合作时可以使用此指南。
