Department of Otorhinolaryngology and Head & Neck Surgery, University Medical Center Utrecht, Utrecht, Netherlands.
Brain Center Rudolf Magnus, University of Utrecht, Utrecht, Netherlands.
Cochlear Implants Int. 2020 Nov;21(6):338-343. doi: 10.1080/14670100.2020.1788858. Epub 2020 Jul 9.
Cochlear implants are known to significantly improve the quality of life (QoL) of implanted children. However, variability exists between self-reported outcomes and parental-reported QoL questionnaires. We evaluated the QoL agreement between children and their parents following cochlear implantation and determined which factors lead to increased agreement. A cross-sectional study was performed including pediatric cochlear implant recipients and their parents. We evaluated postoperative QoL using The Pediatric Quality of Life Inventory (PedsQL). To assess agreement between pediatric and parental QoL perception, PedsQL intra-class correlations (ICCs) were calculated. Thirty-five children and their parents completed QoL questionnaires. Children who were evaluated between 8-12 years of age reported highest absolute total and subscale PedsQL scores. Highest agreement was found amongst parents and children when: (1) children were between 8-12 years at QoL assessment (ICC: between 0.917[95%CI: 0.676-0.981] and 0.972[95%CI: 0.882-0.994]), and (2) when evaluating the physical health QoL domain (ICC: 0.964[95%CI: 0.849-0.992]). This study demonstrates high agreement (ICC > 0.8) between pediatric and parental QoL report in children aged between 8-12 years at QoL assessment. Therefore, results confirm that: (1) QoL agreement between pediatric self-report and parent proxy-report is high in chronically ill children and (2) children using cochlear implants can reliably report QoL between 8-12 years.
人工耳蜗植入术被认为可显著提高植入儿童的生活质量（QoL）。然而，自报告结果和父母报告的 QoL 问卷之间存在差异。我们评估了人工耳蜗植入后儿童及其父母的 QoL 一致性，并确定了哪些因素导致一致性增加。 这项横断面研究纳入了儿科人工耳蜗植入受者及其父母。我们使用儿科生活质量量表（PedsQL）评估术后 QoL。为了评估儿科和父母 QoL 感知之间的一致性，计算了 PedsQL 组内相关系数（ICC）。 35 名儿童及其父母完成了 QoL 问卷。接受 QoL 评估的 8-12 岁儿童报告了最高的绝对总分和子量表 PedsQL 评分。当：（1）儿童在 QoL 评估时年龄在 8-12 岁之间（ICC：0.917[95%CI：0.676-0.981]至 0.972[95%CI：0.882-0.994]）；（2）评估身体健康 QoL 领域时，父母和儿童之间的一致性最高（ICC：0.964[95%CI：0.849-0.992]）。 这项研究表明，在接受 QoL 评估的 8-12 岁儿童中，儿科和父母的 QoL 报告之间具有高度一致性（ICC>0.8）。因此，结果证实：（1）在慢性疾病儿童中，儿科自我报告和家长代理报告之间的 QoL 一致性很高；（2）8-12 岁的人工耳蜗植入儿童可以可靠地报告 QoL。
