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美国印第安人社区的健康差异研究:信任和透明度的重要性。

Health Disparities Research with American Indian Communities: The Importance of Trust and Transparency.

机构信息

Department of Psychology, Montana State University, Bozeman, MT, USA.

Department of Psychology, University of Alaska Anchorage, Anchorage, AK, USA.

出版信息

Am J Community Psychol. 2020 Dec;66(3-4):302-313. doi: 10.1002/ajcp.12445. Epub 2020 Jul 11.

DOI:10.1002/ajcp.12445
PMID:32652706
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7772225/
Abstract

American Indian and Alaska Native (AI/AN) communities experience notable health disparities associated with substance use, including disproportionate rates of accidents/injuries, diabetes, liver disease, suicide, and substance use disorders. Effective treatments for substance use are needed to improve health equity for AI/AN communities. However, an unfortunate history of unethical and stigmatizing research has engendered distrust and reluctance to participate in research among many Native communities. In recent years, researchers have made progress toward engaging in ethical health disparities research by using a community-based participatory research (CBPR) framework to work in close partnership with community members throughout the research process. In this methodological process paper, we discuss the collaborative development of a quantitative survey aimed at understanding risk and protective factors for substance use among a sample of tribal members residing on a rural AI reservation with numerous systems-level barriers to recovery and limited access to treatment. By using a CBPR approach and prioritizing trust and transparency with community partners and participants, we were able to successfully recruit our target sample and collect quality data from nearly 200 tribal members who self-identified as having a substance use problem. Strategies for enhancing buy-in and recruiting a community sample are discussed.

摘要

美国印第安人和阿拉斯加原住民(AI/AN)社区在物质使用方面存在显著的健康差距,包括不成比例的事故/伤害、糖尿病、肝病、自杀和物质使用障碍发生率较高。需要有效的物质使用治疗方法来改善 AI/AN 社区的健康公平。然而,由于不道德和污名化研究的不幸历史,许多土著社区对参与研究持不信任和不情愿的态度。近年来,研究人员通过使用基于社区的参与式研究(CBPR)框架,在研究过程中与社区成员密切合作,在进行伦理健康差异研究方面取得了进展。在本方法学过程论文中,我们讨论了旨在了解居住在农村 AI 保留地的部落成员中物质使用的风险和保护因素的定量调查的协作开发,该保留地存在许多系统层面的恢复障碍,并且获得治疗的机会有限。通过使用 CBPR 方法,并优先考虑与社区合作伙伴和参与者的信任和透明度,我们成功招募了目标样本,并从近 200 名自我认定存在物质使用问题的部落成员中收集了高质量数据。讨论了增强社区样本认同和招募的策略。

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本文引用的文献

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With a Spirit that Understands: Reflections on a Long-term Community Science Initiative to End Suicide in Alaska.《理解之灵:反思阿拉斯加长期社区科学倡议以终结自杀》。
Am J Community Psychol. 2019 Sep;64(1-2):34-45. doi: 10.1002/ajcp.12356. Epub 2019 Jul 25.
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Partnering with Native Communities to Develop a Culturally Grounded Intervention for Substance Use Disorder.与原住民社区合作,开发针对物质使用障碍的本土化干预措施。
Am J Community Psychol. 2019 Sep;64(1-2):72-82. doi: 10.1002/ajcp.12354. Epub 2019 Jul 10.
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Am Psychol. 2019 Jan;74(1):88-100. doi: 10.1037/amp0000331.
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Challenges in Engaging and Disseminating Health Research Results Among Alaska Native and American Indian People in Southcentral Alaska.在阿拉斯加中南部的阿拉斯加原住民和美国印第安人中推广和传播健康研究成果所面临的挑战。
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Diseases due to unhealthy environments: an updated estimate of the global burden of disease attributable to environmental determinants of health.因不健康环境导致的疾病:全球疾病负担归因于健康的环境决定因素的最新估计。
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Pilot Outcome Results of Culturally Adapted Evidence-Based Substance Use Disorder Treatment with a Southwest Tribe.针对一个西南部部落进行文化适应性循证物质使用障碍治疗的初步结果
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Alcohol use among Native Americans compared to whites: Examining the veracity of the 'Native American elevated alcohol consumption' belief.美国原住民与白人间的酒精使用情况比较:检验“美国原住民酒精消费水平高”这一观念的真实性。
Drug Alcohol Depend. 2016 Mar 1;160:65-75. doi: 10.1016/j.drugalcdep.2015.12.015. Epub 2015 Dec 30.
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Epidemiology of DSM-5 Alcohol Use Disorder: Results From the National Epidemiologic Survey on Alcohol and Related Conditions III.《精神疾病诊断与统计手册》第五版酒精使用障碍的流行病学:来自酒精及相关状况全国流行病学调查三期的结果
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