Neuburg Luke
J Pediatr Health Care. 2021 Jan-Feb;35(1):114-119. doi: 10.1016/j.pedhc.2020.05.006. Epub 2020 Jul 10.
Pediatric palliative care (PPC) literature was utilized to identify barriers for early initiation of palliative care at diagnosis among children with life-threatening diseases. Early integration of PPC enhances quality of life and reduces suffering in these children, but many clinicians fail to initiate advanced care planning, establish goals of care, and refer to specialists. Barriers to early PPC initiation include clinician misperceptions, emotional toll on clinicians, and prognostic uncertainty about treatment options and care management strategies. Pediatric nurse practitioners can increase awareness, educate, and support other clinicians to promote early initiation of PPC in children with life-threatening diseases.
儿科姑息治疗(PPC)文献被用于确定危及生命疾病患儿在诊断时早期启动姑息治疗的障碍。早期整合PPC可提高这些患儿的生活质量并减轻痛苦,但许多临床医生未能启动高级护理计划、确立护理目标以及转诊至专科医生。早期启动PPC的障碍包括临床医生的误解、临床医生的情感负担以及治疗选择和护理管理策略的预后不确定性。儿科执业护士可以提高认识、开展教育并支持其他临床医生,以促进对患有危及生命疾病的儿童早期启动PPC。