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成年男性唇裂修复后的心理社会及性方面影响

Psychosocial and Sexual Implications of Repaired Cleft Lip in an Adult Male.

作者信息

Gandhi Jason, Seyam Omar, Liang Raymond, Smith Noel L, Khan Sardar A

机构信息

Department of Physiology and Biophysics, Renaissance School of Medicine at Stony Brook University, Stony Brook, USA.

Medical Student Research Institute, St. George's University School of Medicine, St. George's, GRD.

出版信息

Cureus. 2020 Jun 11;12(6):e8563. doi: 10.7759/cureus.8563.

DOI:10.7759/cureus.8563
PMID:32670700
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7358923/
Abstract

We describe the case of a 32-year-old man with repaired cleft lip complaining of sexual difficulties, which were determined to be multifactorial in origin. A negative body impression, anatomical difficulty in engaging in sexual acts, the indirect impact of secondary complications of cleft lip, and the negative perception of his dysmorphia from potential sexual partners led to his current state. Cleft lip and palate (CLP) are the most common malformations of the craniofacial region. The malformations of anatomical structures involved in CLP can manifest through several variations of clinical features and phenotypes, typically affecting hearing, social integration, speech, and feeding. From birth to the end of growth, a multidisciplinary approach involving orthodontists, speech therapists, psychologists, and social workers is essential for adequate management, even after surgical repair. This case report illustrates the critical importance of the functionality of normal lips essential for sexual function and psychosocial issues encountered in a patient with repaired cleft lip, as this issue likely has a higher prevalence than the literature actually suggests. Adding a psychiatrist on the panel for pediatric reconstructive surgery teams and post-repair rehabilitation would be essential to managing potential sexual and psychological issues into adulthood.

摘要

我们描述了一名32岁唇裂修复患者的病例,该患者主诉存在性功能障碍,经诊断其病因是多方面的。负面的身体印象、性行为中的解剖学困难、唇裂继发并发症的间接影响以及潜在性伴侣对其畸形的负面看法导致了他目前的状况。唇腭裂(CLP)是颅面部最常见的畸形。CLP所涉及的解剖结构畸形可通过多种临床特征和表型变化表现出来,通常会影响听力、社会融入、言语和进食。从出生到生长结束,即使在手术修复后,由正畸医生、言语治疗师、心理学家和社会工作者组成的多学科方法对于适当的管理也是必不可少的。本病例报告说明了正常嘴唇功能对于性功能的至关重要性,以及唇裂修复患者所遇到的心理社会问题,因为这个问题的患病率可能比文献实际显示的要高。在儿科重建手术团队和修复后康复小组中增加一名精神科医生对于处理成年后的潜在性和心理问题至关重要。

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本文引用的文献

1
Psychological Variables in Children and Adolescents with Cleft Lip and/or Palate.唇腭裂儿童及青少年的心理变量
J Clin Pediatr Dent. 2020;44(2):116-122. doi: 10.17796/1053-4625-44.2.9.
2
Achieving Consensus in the Measurement of Psychological Adjustment to Cleft Lip and/or Palate at Age 8+ Years.8岁及以上唇腭裂患者心理调适测量的共识达成
Cleft Palate Craniofac J. 2020 Jun;57(6):746-752. doi: 10.1177/1055665619898596. Epub 2020 Jan 24.
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Psychological Problems and Cleft Lip and/or Palate.心理问题与唇裂和/或腭裂
Rev Fac Cien Med Univ Nac Cordoba. 2019 Dec 4;76(4):264. doi: 10.31053/1853.0605.v76.n4.23136.
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Effects of cleft lip and palate on children's psychological health: A systematic review.唇腭裂对儿童心理健康的影响:一项系统评价。
J Taibah Univ Med Sci. 2018 Jun 5;13(4):311-318. doi: 10.1016/j.jtumed.2018.04.007. eCollection 2018 Aug.
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Opinions of Speech-Language Pathologists Regarding Speech Management for Children With Cleft Lip and Palate.言语治疗师对唇腭裂患儿言语管理的看法。
Cleft Palate Craniofac J. 2020 Jan;57(1):55-64. doi: 10.1177/1055665619857000. Epub 2019 Jun 20.
6
Fractional CO laser treatment for post-surgical lip scars in cleft lip and palate patients.分束 CO2 激光治疗唇裂腭裂术后唇瘢痕
Lasers Med Sci. 2019 Oct;34(8):1699-1703. doi: 10.1007/s10103-019-02819-z. Epub 2019 Jun 11.
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Psychological Effect of Prenatal Diagnosis of Cleft Lip and Palate: A Systematic Review.唇腭裂产前诊断的心理影响:一项系统综述
Contemp Clin Dent. 2018 Apr-Jun;9(2):304-308. doi: 10.4103/ccd.ccd_673_17.
8
Psychosocial Functioning of Children in a Craniofacial Support Group.颅面支持小组中儿童的心理社会功能
Cleft Palate Craniofac J. 2019 Mar;56(3):340-348. doi: 10.1177/1055665618775866. Epub 2018 May 10.
9
Adult Narratives of the Psychosocial Impact of Cleft in a Western Australian Cohort.西澳大利亚队列中唇腭裂患者心理社会影响的成人叙述
Cleft Palate Craniofac J. 2019 Mar;56(3):373-382. doi: 10.1177/1055665618770184. Epub 2018 Apr 13.
10
Impact of Orofacial Dysfunction on the Quality of Life of Adult Patients With Cleft Lip and Palate.口面部功能障碍对成年唇腭裂患者生活质量的影响。
Cleft Palate Craniofac J. 2018 Sep;55(8):1138-1144. doi: 10.1177/1055665618760897. Epub 2018 Mar 28.