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唇腭裂青年成人自我认定的就业挑战:一项质性探索

Self-Identified Employment Challenges for Young Adults with a Cleft Lip and Palate: A Qualitative Exploration.

作者信息

Rani Haslina, Mohd Ibrahim Hasherah, Mohamed Noor Shafie Nurshazwanie Amira, Mohamed Suziyani, Shaari Azianura Hani, Nor Murshida Marizan, Mohd-Dom Tuti Ningseh

机构信息

Faculty of Dentistry, Universiti Kebangsaan Malaysia, Kuala Lumpur 50300, Malaysia.

Family Oral Wellness Research Group, Universiti Kebangsaan Malaysia, Kuala Lumpur 50300, Malaysia.

出版信息

Behav Sci (Basel). 2025 Jan 20;15(1):91. doi: 10.3390/bs15010091.

Abstract

As individuals with a cleft lip and palate (CLP) transition into adulthood, they face unique employment challenges related to income, job stability, and fewer career options. This study explored these challenges through two focus group discussions with 19 participants (aged 21-38), primarily women, to understand their employment experiences. Thematic analysis revealed the following three main themes: (1) physical factors, (2) psychosocial factors, and (3) overcoming employment challenges, with nine sub-themes including speech, hearing, appearance, health, childhood experiences, societal expectations, lack of self-confidence, communication improvement, and self-esteem building. The findings highlighted that physical and psychosocial factors significantly shape employment outcomes for CLP individuals. Difficulties with speech often hinder professional communication, while appearance concerns can reduce confidence in interviews and workplaces. To address these issues, the participants used strategies like targeted speech therapy and self-esteem building, which helped improve their communication and resilience. This study emphasises the need for targeted interventions such as specialised career counselling, access to assistive technologies, and inclusive workplace policies to support CLP individuals in overcoming employment barriers and achieving stable careers.

摘要

随着唇腭裂(CLP)患者步入成年,他们在收入、工作稳定性以及职业选择较少等方面面临着独特的就业挑战。本研究通过与19名参与者(年龄在21至38岁之间,主要为女性)进行两次焦点小组讨论,探讨了这些挑战,以了解她们的就业经历。主题分析揭示了以下三个主要主题:(1)身体因素,(2)心理社会因素,以及(3)克服就业挑战,其中包括九个子主题,分别为言语、听力、外貌、健康、童年经历、社会期望、缺乏自信、沟通改善和自尊建立。研究结果强调,身体和心理社会因素显著影响唇腭裂患者的就业结果。言语方面的困难常常阻碍职业交流,而对外貌的担忧可能会降低在面试和工作场所的信心。为解决这些问题,参与者采用了针对性言语治疗和自尊建立等策略,这有助于改善她们的沟通能力和适应能力。本研究强调需要有针对性的干预措施,如专门的职业咨询、获得辅助技术以及包容性的职场政策,以支持唇腭裂患者克服就业障碍并实现稳定的职业发展。

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