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那个曾经耸肩的人——一个脑外伤患者的亲身经历。

The man who used to shrug - one man's lived experience of TBI.

机构信息

Manchester Metropolitan University, Manchester, UK.

Acquired Brain Injury (ABI), Ireland.

出版信息

NeuroRehabilitation. 2020;47(1):11-24. doi: 10.3233/NRE-203079.

Abstract

BACKGROUND

Stress is common to the experience of TBI. Stressors challenge physical and psychological coping abilities and undermine wellbeing. Brain injury constitutes a specific chronic stressor. An issue that hinders the usefulness of a stress-based approach to brain injury is a lack of semantic clarity attaching to the term stress. A more precise conceptualisation of stress that embraces experienced uncertainty is allostasis.

OBJECTIVE

An emerging body of research, collectively identifiable as 'the social cure' literature, shows that the groups that people belong to can promote adjustment, coping, and well-being amongst individuals confronted with injuries, illnesses, traumas, and stressors. The idea is deceptively simple, yet extraordinarily useful: the sense of self that individuals derive from belonging to social groups plays a key role in determining health and well-being. The objective of this research was to apply a social cure perspective to a consideration of an individual's lived experience of TBI.

METHODS

In a novel application of interpretative phenomenological analysis (IPA) this research has investigated one person's lived experience in a single case study of traumatic brain injury.

RESULTS

Paradox, shifting perspectives and self under stress, linked by uncertainty, were the themes identified.

CONCLUSIONS

A relational approach must be key to TBI rehabilitation.

摘要

背景

创伤性脑损伤(TBI)患者普遍面临压力。压力源挑战身体和心理应对能力,破坏幸福感。脑损伤构成了一种特定的慢性压力源。阻碍基于压力的脑损伤方法有效性的一个问题是,术语“压力”缺乏语义清晰度。一种更精确的压力概念化,包括体验到的不确定性,即适应。

目的

越来越多的研究可被统称为“社会疗愈”文献,表明人们所属的群体可以促进面对伤害、疾病、创伤和压力源的个体的调整、应对和幸福感。这个想法看似简单,实则非常有用:个体从属于社会群体中获得的自我意识在决定健康和幸福感方面起着关键作用。本研究的目的是将社会疗愈的观点应用于个体对创伤性脑损伤的生活体验的考虑。

方法

本研究创新性地应用解释现象学分析(IPA)方法,对一例创伤性脑损伤的个体生活体验进行了研究。

结果

通过不确定性联系起来的悖论、视角转变和压力下的自我,是确定的主题。

结论

关系方法必须是 TBI 康复的关键。

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