3065Fudan University, China.
3065Duke University School of Nursing, USA.
Res Aging. 2021 Mar-Apr;43(3-4):177-187. doi: 10.1177/0164027520935597. Epub 2020 Jul 17.
China has experienced a substantial increase in the number of older adults with dementia and milder forms of cognitive impairment. Being spouses of Persons with cognitive impairment (PWCI) and living with them for several decades does not necessarily mean that it is easier for them to provide person-centered care and maintain a valued and healthy relationship. The current study explored how elements of PCC, as operationalized by the Senses Framework, operate or fail to operate in the dyadic experiences of PWCI and their spousal care partners within the socio-cultural context of China. Our findings suggest that PWCI and their spouses experience the six senses through the person-centeredness in their daily interactions with each other. It also indicated successes and challenges to being person-centered early in the disease and identified their unmet needs as well as barriers and facilitators to improve their well-being.
中国患有痴呆症和轻度认知障碍的老年人数量大幅增加。作为认知障碍者(PWCI)的配偶,与他们共同生活几十年,并不一定意味着他们更容易提供以患者为中心的护理,维持有价值且健康的关系。本研究探讨了 Senses 框架所操作化的 PCC 要素,如何在中国的社会文化背景下,在 PWCI 及其配偶护理伙伴的二元关系中运作或无法运作。我们的研究结果表明,PWCI 和他们的配偶通过彼此日常互动中的以患者为中心来体验这六种感觉。它还表明,在疾病早期做到以患者为中心存在成功和挑战,并确定了他们未满足的需求以及改善他们福祉的障碍和促进因素。