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寻求平衡:痴呆症患者中国配偶为管理痴呆症风险而改变健康行为:一项定性研究

Striking a balance: health behaviour changes in Chinese spouses of people with dementia to manage dementia risk: a qualitative study.

作者信息

Fang Shuyan, Li Wei, Gao Shizheng, Song Dongpo, Zhi Shengze, Gu Yanyan, Sun Jiao

机构信息

School of Nursing, Jilin University, No.965 Xinjiang Street, Changchun, Jilin, 130021, People's Republic of China.

Geriatric Cardiovascular Department, Hebei General Hospital, No.348 Heping West Road, Shijiazhuang City, Hebei Province, People's Republic of China.

出版信息

BMC Nurs. 2024 Dec 18;23(1):909. doi: 10.1186/s12912-024-02588-3.


DOI:10.1186/s12912-024-02588-3
PMID:39695536
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11656962/
Abstract

BACKGROUND: Multiple studies have shown that spouses of people with dementia (PwD) are two to six times more likely to develop dementia compared to the general population. Encouraging healthy behaviours and addressing modifiable risk factors could potentially prevent or delay up to 40% of dementia cases. However, little is known about how health behaviours change when a spouse assumes the role of primary caregiver. Therefore, the aim of this study was to explore the shared lived experience of spousal caregivers of PwD, focusing on identifying the trajectory and key events of that shape health behaviour changes after their partner's diagnosis. These findings seek to inform strategies for adopting and sustaining healthy behaviours among spousal caregivers. METHOD: A qualitative descriptive study was conducted. Using maximum variation and purposive sampling, 20 spouses of PwD who exhibited two or more risk factors were recruited for semistructured interviews. The interviews were transcribed verbatim and analysed using thematic analysis. RESULTS: We found that in traditional Chinese culture health behaviour changes for spouses and people with dementia coping with the challenges of dementia occurred in two directions; (a) priming-leaping-coping: becoming a "smart" caregiver and (b) struggling-trudging-silence: the process by which the self is "swallowed." CONCLUSION: This study highlights how caregiving experiences influence spouses' health behaviors and dementia prevention, particularly in the Chinese context. The findings underscore the challenges of balancing caregiving with self-care. Culturally tailored, family-centered interventions are needed to support both caregivers and their long-term well-being.

摘要

背景:多项研究表明,与普通人群相比,痴呆症患者(PwD)的配偶患痴呆症的可能性要高出两到六倍。鼓励健康行为并解决可改变的风险因素可能会预防或延缓多达40%的痴呆症病例。然而,对于配偶承担主要照顾者角色时健康行为如何变化,人们知之甚少。因此,本研究的目的是探索痴呆症患者配偶照顾者的共同生活经历,重点是确定其伴侣诊断后塑造健康行为变化的轨迹和关键事件。这些发现旨在为配偶照顾者采取和维持健康行为的策略提供信息。 方法:进行了一项定性描述性研究。采用最大变异抽样和目的抽样法,招募了20名表现出两种或更多风险因素的痴呆症患者配偶进行半结构化访谈。访谈内容逐字转录,并采用主题分析法进行分析。 结果:我们发现,在中国传统文化中,配偶和痴呆症患者应对痴呆症挑战时的健康行为变化呈现两个方向:(a)准备-跨越-应对:成为“明智”的照顾者;(b)挣扎-跋涉-沉默:自我被“吞噬”的过程。 结论:本研究强调了照顾经历如何影响配偶的健康行为和痴呆症预防,尤其是在中国背景下。研究结果强调了在照顾他人与自我照顾之间取得平衡的挑战。需要开展针对文化特点的、以家庭为中心的干预措施来支持照顾者及其长期福祉。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f9f4/11656962/e6d52f30a681/12912_2024_2588_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f9f4/11656962/043106591e4e/12912_2024_2588_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f9f4/11656962/e6d52f30a681/12912_2024_2588_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f9f4/11656962/043106591e4e/12912_2024_2588_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f9f4/11656962/e6d52f30a681/12912_2024_2588_Fig2_HTML.jpg

相似文献

[1]
Striking a balance: health behaviour changes in Chinese spouses of people with dementia to manage dementia risk: a qualitative study.

BMC Nurs. 2024-12-18

[2]
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[3]
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[4]
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[5]
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[6]
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Int Nurs Rev. 2012-11-21

[7]
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J Psychiatr Ment Health Nurs. 2022-12

[8]
Contrasting the risk factors of grief and burden in caregivers of persons with dementia: Multivariate analysis.

Int J Geriatr Psychiatry. 2018-11-19

[9]
Spouses' experience of living with a partner diagnosed with a dementia: a synthesis of the qualitative research.

Int Psychogeriatr. 2016-4

[10]
Enhancement of Aging in Place: An Evolving Understanding of Person-Centered Dementia Care in Home Settings.

J Alzheimers Dis. 2022

本文引用的文献

[1]
Being a Husband and Caregiver: The Adjustment of Roles When Caring for a Wife Who Has Dementia.

Can J Aging. 2025-3

[2]
Family Caregivers' Perceptions and Experiences of Supporting Older People to Cope With Loneliness: A Qualitative Interview Study.

Int J Ment Health Nurs. 2024-12

[3]
Affiliate Stigma among family caregivers of individuals with dementia in China: a cross-sectional study.

Front Public Health. 2024

[4]
Resilience in family caregivers of Asian older people with dementia: An integrative review.

J Adv Nurs. 2025-1

[5]
Does having a family member with dementia affect health beliefs about changing lifestyle and health behaviour for dementia risk reduction?

Psychogeriatrics. 2024-7

[6]
Life experience and identity of spousal caregivers of people with dementia: A qualitative systematic review.

Int J Nurs Stud. 2024-6

[7]
The Effectiveness of a Community Nurse-Led Support Program for Dementia Caregivers in Chinese Communities: The Chongqing Ageing and Dementia Study.

J Alzheimers Dis Rep. 2023-11-1

[8]
Cross-National Analysis of the Associations Between Familism and Self-Efficacy in Family Caregivers of People With Dementia: Effects on Burden and Depression.

J Aging Health. 2024-8

[9]
Healthy lifestyle and cognitive aging: What is the gap behind prescribing healthier lifestyle?

Alzheimers Dement. 2023-7

[10]
Positive aspects of caregiving among informal caregivers of persons with dementia in the Asian context: a qualitative study.

BMC Geriatr. 2023-1-27

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