患者在乳腺癌手术后接受康复治疗和使用带生物反馈的移动健康系统的体验：定性研究。
Patient Experiences of Rehabilitation and the Potential for an mHealth System with Biofeedback After Breast Cancer Surgery: Qualitative Study.
机构信息
Physiotherapy Department, Beacon Hospital, Dublin, Ireland.
Insight Centre for Data Analytics, University College Dublin, Dublin, Ireland.
出版信息
JMIR Mhealth Uhealth. 2020 Jul 29;8(7):e19721. doi: 10.2196/19721.
BACKGROUND
Physiotherapy-led home rehabilitation after breast cancer surgery can protect against the development of upper limb dysfunction and other disabling consequences of surgery. A variety of barriers can limit physical rehabilitation outcomes, and patients may benefit from more support during this time. Mobile health (mHealth) systems can assist patients during rehabilitation by providing exercise support, biofeedback, and information. Before designing mHealth systems for a specific population, developers must first engage with users to understand their experiences and needs.
OBJECTIVE
The aims of this study were to explore patients' rehabilitation experiences and unmet needs during home rehabilitation after breast cancer surgery and to understand their experiences of mHealth technology and the requirements they desire from an mHealth system.
METHODS
This was the first stage of a user-centered design process for an mHealth system. We interviewed 10 breast cancer survivors under the two main topics of "Rehabilitation" and "Technology" and performed a thematic analysis on the interview data.
RESULTS
Discussions regarding rehabilitation focused on the acute and long-term consequences of surgery; unmet needs and lack of support; self-driven rehabilitation; and visions for high-quality rehabilitation. Regarding technology, participants reported a lack of mHealth options for this clinical context and using non-cancer-specific applications and wearables. Participants requested an mHealth tool from a reliable source that provides exercise support.
CONCLUSIONS
There are unmet needs surrounding access to physiotherapy, information, and support during home rehabilitation after breast cancer surgery that could be addressed with an mHealth system. Breast cancer survivors are open to using an mHealth system and require that it comes from a reliable source and focuses on supporting exercise performance.
背景
乳腺癌手术后的理疗主导的家庭康复可以预防上肢功能障碍和手术其他致残后果的发生。各种障碍可能会限制身体康复的效果，而患者在此期间可能需要更多的支持。移动健康（mHealth）系统可以通过提供运动支持、生物反馈和信息来帮助患者进行康复。在为特定人群设计 mHealth 系统之前，开发人员必须首先与用户接触，了解他们的体验和需求。
目的
本研究旨在探讨乳腺癌手术后家庭康复期间患者的康复体验和未满足的需求，并了解他们对 mHealth 技术的体验以及他们对 mHealth 系统的期望。
方法
这是 mHealth 系统用户为中心设计过程的第一阶段。我们根据“康复”和“技术”这两个主要主题对 10 名乳腺癌幸存者进行了访谈，并对访谈数据进行了主题分析。
结果
关于康复的讨论集中在手术的急性和长期后果；未满足的需求和缺乏支持；自我驱动的康复；以及对高质量康复的愿景。关于技术，参与者报告说，针对这种临床情况的 mHealth 选择有限，并且使用非癌症特定的应用程序和可穿戴设备。参与者要求来自可靠来源的 mHealth 工具提供运动支持。
结论
乳腺癌手术后家庭康复期间存在对理疗、信息和支持的未满足需求，可以通过 mHealth 系统来解决。乳腺癌幸存者愿意使用 mHealth 系统，并且要求该系统来自可靠的来源，并专注于支持运动表现。
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