Shanghai University of Traditional Chinese Medicine, Shanghai, China.
Ruijin Hospital, Shanghai Jiaotong University School of Medicine, Shanghai, China.
BMC Med Inform Decis Mak. 2024 Apr 25;24(1):108. doi: 10.1186/s12911-024-02515-1.
Mobile health (mHealth) may be an ideal solution for breast cancer (BC) patients in China to access weight management interventions. User retention and engagement are the main challenges faced by mHealth applications. A user persona, which is a user-centered design process, can lead to the development of mHealth that is more acceptable to the needs of target users. This study aimed to investigate the variety of experiences in weight management and the behavioral preferences of BC patients receiving chemotherapy to develop users' personal information and persona development for the design and implementation of mHealth interventions.
Sixteen individual semi-structured in-depth interviews were conducted with BC patients receiving chemotherapy. We employed the thematic analysis method to analyze the interview transcripts in NVivo 11 software. The themes obtained from the analysis were used as the subdomains of personas. A proforma was designed to extract each participant's experience in each subdomain. Patients who exhibited similar experience in subdomains were grouped into a persona using affinity diagrams. The personas were named according to their prominent features. A questionnaire survey was conducted to validate the personas and to test whether the personas that were generated from the qualitative interview data were applicable to the Chinese population with BC.
Four themes were identified as subdomains of weight management personas: the perception of weight management while undergoing chemotherapy, symptoms and emotional disturbance, changes in diet and exercise, and health literacy and information seeking. Five personas were ultimately obtained: (1) positive weight controllers, (2) patients who were inactive due to fatigue, (3) young patients who avoided communication, (4) overweight patients with treatment priority, and (5) patients who engaged in irregular exercise. Finally, the quantitative study showed that 51.58% of patients chose one of these five personas to represent themselves in weight management. None of the patient reported selecting options that were not explicitly outlined in the questionnaire and provided personalized descriptions of their weight management characteristics.
The selected personas were developed from in-depth interviews on biopsychosocial areas. They highlight different weight management patterns in Chinese BC patients and provide implications for both the design of mHealth systems and traditional interventions.
移动医疗(mHealth)可能是中国乳腺癌(BC)患者获得体重管理干预的理想解决方案。用户保留和参与是 mHealth 应用程序面临的主要挑战。用户角色(persona)是一种以用户为中心的设计过程,可以开发出更符合目标用户需求的 mHealth。本研究旨在调查接受化疗的 BC 患者在体重管理方面的各种体验和行为偏好,为 mHealth 干预措施的设计和实施开发用户个人信息和角色发展。
对 16 名接受化疗的 BC 患者进行了 16 次个人半结构化深度访谈。我们使用主题分析方法在 NVivo 11 软件中分析访谈记录。从分析中获得的主题被用作角色的子域。设计了一个表格来提取每个参与者在每个子域中的经验。在子域中表现出相似经验的患者使用亲和图被分组到一个角色中。角色根据其突出特征命名。进行了一项问卷调查,以验证角色,并测试从定性访谈数据中生成的角色是否适用于中国 BC 人群。
确定了体重管理角色的四个主题作为子域:化疗期间对体重管理的看法、症状和情绪困扰、饮食和运动的变化、健康素养和信息寻求。最终获得了五个角色:(1)积极的体重控制者,(2)因疲劳而不活跃的患者,(3)避免沟通的年轻患者,(4)治疗优先的超重患者,(5)不规则运动的患者。最后,定量研究表明,51.58%的患者选择了这五个角色中的一个来代表自己进行体重管理。没有患者选择问卷中没有明确列出的选项,并对自己的体重管理特点进行了个性化描述。
选择的角色是从对生物心理社会领域的深入访谈中开发出来的。它们突出了中国 BC 患者不同的体重管理模式,并为 mHealth 系统和传统干预措施的设计提供了启示。