Department of Obstetrics & Gynecology, Indiana University School of Medicine, Indianapolis, IN, USA.
Children's Hospital of Wisconsin, Milwaukee, WI, USA.
J Perinatol. 2021 Mar;41(3):396-403. doi: 10.1038/s41372-020-0739-5. Epub 2020 Jul 23.
To qualitatively explore perceptions of pain/suffering, disability, and coping by race among pregnant women facing the threat of a periviable delivery (22 0/7-24 6/7 weeks).
Interviews were conducted in-hospital prior to delivery. Transcripts were coded verbatim and responses were stratified by race (white vs non-white). Conventional content analysis was conducted using NVivo 12.
We recruited 30 women (50% white, 50% non-white). Most women expressed love and acceptance of their babies and described pain as a "means to an end." Non-white women focused almost exclusively on immediate survival and perseverance, while white women expressed concerns about quality of life beyond the NICU. The majority of non-white women were unable to recall any discussions with their doctors about their baby's comfort, pain, or suffering.
These findings may suggest that culturally tailored approaches to counseling and decision-support may be beneficial for patients from marginalized or minoritized groups.
定性探讨面临极早产儿分娩（220/7-246/7 周）威胁的孕妇对疼痛/痛苦、残疾和应对方式的种族差异感知。
在分娩前于医院内进行访谈。逐字记录转录本，并按种族（白人与非白人）对回复进行分层。使用 NVivo 12 进行常规内容分析。
我们招募了 30 名女性（50%为白人，50%为非白人）。大多数女性表达了对婴儿的爱和接受，并将疼痛描述为“达到目的的手段”。非白人女性几乎完全专注于眼前的生存和坚持，而白人女性则表达了对新生儿重症监护室之外生活质量的担忧。大多数非白人女性无法回忆起与医生讨论过婴儿的舒适、疼痛或痛苦。
这些发现可能表明，针对边缘化或少数群体患者，提供文化适应性的咨询和决策支持方法可能是有益的。
