College of Nursing, National Taipei University of Nursing and Health Sciences, Taipei 11219, Taiwan.
Department of Nursing, Chang Gung University of Science and Technology, Taoyuan 33303, Taiwan.
Int J Environ Res Public Health. 2020 Jul 16;17(14):5132. doi: 10.3390/ijerph17145132.
Many adolescents with type 1 diabetes experience challenges in achieving good glycemic control and have insufficient understanding in executing interventions for glycemic control. This study aimed to understand self-management experiences of adolescents with type 1 diabetes in Taiwan. In this descriptive phenomenological study, we conducted in-depth interviews with 18 adolescents with type 1 diabetes from the pediatric outpatient clinic of a medical center. Data were analyzed using the Colaizzi's method. Four themes were identified: (1) misconception regarding self-management of blood glucose; (2) conflict between depending on and breaking away from parental assistance for glycemic control; (3) encounter with disruptions in glycemic control regimen due to the presence of schedule changes; and (4) lack of motivation to achieve good glycemic control. The findings indicated that the misconceptions of adolescents with type 1 diabetes about managing glycemic levels resulted from an insufficient understanding of self-management of diabetes. In Taiwan, the heavy emphasis of academic achievement and changes of schedules during breaks tended to disrupt the regimen for glycemic control. Healthcare professionals are encouraged to provide individualized education focusing on the adolescents' misconceptions regarding self-management of diabetes.
许多 1 型糖尿病青少年在实现良好血糖控制方面面临挑战，并且对执行血糖控制干预措施的理解不足。本研究旨在了解台湾 1 型糖尿病青少年的自我管理经验。在这项描述性现象学研究中，我们对来自一家医疗中心儿科门诊的 18 名 1 型糖尿病青少年进行了深入访谈。使用 Colaizzi 的方法对数据进行分析。确定了四个主题：(1) 对血糖自我管理的误解；(2) 在依赖和摆脱父母对血糖控制的帮助之间存在冲突；(3) 由于日程安排的变化而导致血糖控制方案中断；(4) 缺乏实现良好血糖控制的动力。研究结果表明，青少年对管理血糖水平的误解是由于对糖尿病自我管理的理解不足造成的。在台湾，学业成绩的重视和休息期间日程安排的变化往往会打乱血糖控制方案。鼓励医疗保健专业人员提供个性化教育，重点关注青少年对糖尿病自我管理的误解。
