Heitzer Andrew M, Ris Douglas, Raghubar Kimberly, Kahalley Lisa S, Hilliard Marisa E, Gragert Marsha
Department of Pediatrics, Psychology Section, Baylor College of Medicine / Texas Children's Hospital, 6701 Fannin St., CC 1630, Houston, TX, 77030-2399, USA.
Curr Oncol Rep. 2020 Jul 28;22(10):102. doi: 10.1007/s11912-020-00963-2.
Transition-age patients with history of a pediatric brain tumor are at significant risk for difficulties transitioning to adulthood. We review current transition models and the potential role of neuropsychology in the transition process for adolescent and young adult brain tumor survivors.
Several recently developed healthcare transition models include consideration of patients' cognitive and functional capacities, yet currently available transition readiness tools are limited in scope and do not possess adequate normative data across pediatric medical populations. We explore the potential utility and added benefit of systematically incorporating neuropsychology in the transition process for pediatric brain tumor survivors. The literature supports increased evaluation and intervention targeted at psychosocial barriers to transition. Based on these findings, we propose a family-centered and multidisciplinary care model that promotes both medical and broader psychosocial transition processes. Neuropsychology is ideally suited to assess the wide-ranging areas encompassed in transition readiness and to facilitate the transition process.
有小儿脑肿瘤病史的过渡年龄患者在向成年过渡时面临重大困难风险。我们回顾了当前的过渡模式以及神经心理学在青少年和年轻成年脑肿瘤幸存者过渡过程中的潜在作用。
最近开发的几种医疗保健过渡模式包括考虑患者的认知和功能能力,但目前可用的过渡准备工具范围有限,并且在儿科医疗人群中没有足够的标准化数据。我们探讨了在小儿脑肿瘤幸存者的过渡过程中系统纳入神经心理学的潜在效用和额外益处。文献支持增加针对过渡的心理社会障碍的评估和干预。基于这些发现,我们提出了一种以家庭为中心的多学科护理模式,该模式促进医疗和更广泛的心理社会过渡过程。神经心理学非常适合评估过渡准备中涵盖的广泛领域,并促进过渡过程。