Department of Psychiatry, Boston Children's Hospital/Harvard Medical School, 333 Longwood Ave, Boston, MA, 02115, USA.
Department of Pediatrics, Psychology Section, Baylor College of Medicine/Texas Children's Hospital, 1102 Bates Ave., Ste. 245, Houston, TX, 77030, USA.
Pediatr Nephrol. 2020 May;35(5):767-775. doi: 10.1007/s00467-019-04227-5. Epub 2019 Mar 20.
Dialysis treatment has evolved to enable children to live longer and transition to adulthood. Thus, the focus of care shifts to a consideration of pediatric patients' quality of life and psychosocial functioning across childhood, adolescence, and young adulthood. Despite well-documented concerns in various domains (including depression/anxiety, self-esteem and social functioning, behavior problems, and academic and cognitive functioning), limited literature exists regarding psychosocial guidelines for children and adolescents undergoing dialysis. This article aims to address this gap by providing a review of the pediatric literature examining psychosocial functioning in patients treated with dialysis, as well as recommendations for specific psychosocial concerns. Overall recommendations for care include screening for anxiety and depression, referral to pediatric psychologists for evidence-based intervention, utilization of child life specialists, opportunities to promote social functioning, neuropsychological evaluation and school programming, ongoing support in preparing for transition to adult care, and periodic measure of quality of life. Together, these suggestions promote a holistic approach to patient-centered care by supporting both physical and psychosocial well-being.
透析治疗已经发展到能够使儿童活得更久并过渡到成年。因此,护理的重点转移到考虑儿科患者在儿童期、青春期和青年期的生活质量和心理社会功能。尽管在各个领域(包括抑郁/焦虑、自尊和社会功能、行为问题以及学业和认知功能)都有充分记录的问题,但关于接受透析治疗的儿童和青少年的心理社会指导方针的文献有限。本文旨在通过回顾检查接受透析治疗的患者的心理社会功能的儿科文献来解决这一差距,并提出针对特定心理社会问题的建议。总体护理建议包括焦虑和抑郁筛查、向儿科心理学家转介以进行基于证据的干预、利用儿童生活专家、促进社会功能的机会、神经心理学评估和学校编程、为过渡到成人护理做准备的持续支持,以及定期测量生活质量。这些建议共同通过支持身体和心理社会健康来促进以患者为中心的护理的整体方法。