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鉴定一种以魔术为主题的手-臂双手强化治疗方案对单侧痉挛性脑瘫儿童的疗效机制:使用行为改变理论的定性研究。

Identifying mechanisms of change in a magic-themed hand-arm bimanual intensive therapy programme for children with unilateral spastic cerebral palsy: a qualitative study using behaviour change theory.

机构信息

Department of Behavioural Science and Health, University College London, 1-19 Torrington Place, London, WC1E 7HB, UK.

Centre for Behaviour Change, University College London, London, UK.

出版信息

BMC Pediatr. 2020 Jul 31;20(1):363. doi: 10.1186/s12887-020-02246-y.

Abstract

BACKGROUND

There has been much research into how to promote upper-limb skills to achieve functional independence in children with unilateral spastic cerebral palsy (USCP). One researched intervention is the Breathe Magic programme, which follows the protocol of hand-arm bimanual intensive therapy (HABIT) whilst, incorporating magic tricks to develop children's motor skills and bimanual skills. However, whilst research has found the programme to be effective, there has been little consideration of how the intervention leads to a positive outcome: what the psychological, social and physical mechanisms of action are.

METHODS

Qualitative semi-structured interviews with 21 children with USCP who participated in the Breathe Magic HABIT intervention, and focus groups with 17 parents and/or carers were undertaken. Analysis was conducted through the lens of the COM-B behaviour change model using a combined deductive framework and inductive thematic analysis. Reliability of coding was confirmed through random extraction and double coding of a portion of responses and the calculation of inter-rater reliability.

RESULTS

Breathe Magic brings about change and positive outcomes by increasing children's psychological and physical capabilities, providing social opportunities, and enhancing reflective and automatic motivation. Additionally, a number of enablers to engaging in the intervention were identified, particularly under psychological capabilities, social opportunities and both reflective and automatic motivation. Very few barriers were raised; those that were raised were of relatively low frequency of reporting.

CONCLUSIONS

By conducting a theory-based qualitative process evaluation, this study demonstrated the mechanisms of change behind the Breathe Magic HABIT intervention for children with USCP. Breathe Magic was found to be a well-structured combination of intended and unintended mechanisms of change. Overall, the success of Breathe Magic was observed through not only its intended mechanisms to enhance hand skills, but also through unintended psychological improvements in children's hand function, as well as social and motivational benefits resulting from interaction between children and parents.

摘要

背景

有很多研究探讨如何促进上肢技能,以实现单侧痉挛性脑瘫(USCP)儿童的功能独立。一项经过研究的干预措施是“Breathe Magic 计划”,它遵循双手臂双手强化疗法(HABIT)的方案,同时融入魔术技巧,以发展儿童的运动技能和双手技能。然而,尽管该计划已被证明是有效的,但很少考虑干预措施如何导致积极的结果:其心理、社会和物理作用机制是什么。

方法

对 21 名参加“Breathe Magic HABIT 干预”的 USCP 儿童进行定性半结构式访谈,并对 17 名家长/照顾者进行焦点小组讨论。分析是通过 COM-B 行为改变模型的镜头进行的,使用了演绎框架和归纳主题分析相结合的方法。通过随机提取和对部分回复进行双重编码,并计算评分者间可靠性,来确认编码的可靠性。

结果

“Breathe Magic”通过提高儿童的心理和身体能力、提供社会机会以及增强反思和自动动机,带来了变化和积极的结果。此外,确定了一些促进参与干预的因素,特别是在心理能力、社会机会以及反思和自动动机方面。提出的障碍很少,且报告的频率相对较低。

结论

通过进行基于理论的定性过程评估,本研究展示了“Breathe Magic”对 USCP 儿童 HABIT 干预的作用机制。“Breathe Magic”被发现是一种精心设计的、包含预期和非预期作用机制的组合。总体而言,“Breathe Magic”的成功不仅在于其增强手部技能的预期机制,还在于儿童手部功能的非预期心理改善,以及儿童与家长之间互动带来的社会和动机效益。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3d75/7394671/b19ae7be9eb3/12887_2020_2246_Fig1_HTML.jpg

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