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The importance of advance care planning for children with chronic respiratory failure.

作者信息

Miles Alison H, Turnbull Alison E, Sterni Laura M

机构信息

Division of Pediatric Critical Care Medicine, School of Medicine, Johns Hopkins University, Baltimore, Maryland.

Division of Pulmonary and Critical Care Medicine, School of Medicine, Johns Hopkins University, Baltimore, Maryland.

出版信息

Pediatr Pulmonol. 2020 Oct;55(10):2489-2491. doi: 10.1002/ppul.24979. Epub 2020 Aug 10.

DOI:10.1002/ppul.24979
PMID:32776702
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7719584/
Abstract
摘要

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本文引用的文献

1
Decisions for Long-Term Ventilation for Children. Perspectives of Family Members.儿童长期通气决策。家庭成员的观点。
Ann Am Thorac Soc. 2020 Jan;17(1):72-80. doi: 10.1513/AnnalsATS.201903-271OC.
2
Advance Care Planning and Parent-Reported End-of-Life Outcomes in Children, Adolescents, and Young Adults With Complex Chronic Conditions. Advance Care Planning 与患有复杂慢性疾病的儿童、青少年和年轻人的父母报告的临终结局。
Crit Care Med. 2019 Jan;47(1):101-108. doi: 10.1097/CCM.0000000000003472.
3
Low prevalence of palliative care and ethics consultations for children with chronic critical illness.慢性危重症儿童姑息治疗和伦理咨询的低普及率。
Acta Paediatr. 2018 Oct;107(10):1832-1833. doi: 10.1111/apa.14394. Epub 2018 May 30.
4
Bringing Social Context Into the Conversation About Pediatric Long-term Ventilation.将社会背景纳入关于儿童长期通气的讨论中。
Hosp Pediatr. 2018 Jan 11. doi: 10.1542/hpeds.2016-0168.
5
Survey of financial burden of families in the U.S. with children using home mechanical ventilation.美国家庭中使用家用机械通气的儿童的经济负担调查。
Pediatr Pulmonol. 2018 Jan;53(1):108-116. doi: 10.1002/ppul.23917. Epub 2017 Nov 20.
6
Professional Responsibility, Consensus, and Conflict: A Survey of Physician Decisions for the Chronically Critically Ill in Neonatal and Pediatric Intensive Care Units.专业责任、共识与冲突：新生儿及儿科重症监护病房中对慢性危重症患儿治疗决策的医师调查
Pediatr Crit Care Med. 2017 Sep;18(9):e415-e422. doi: 10.1097/PCC.0000000000001247.
7
Decisions around Long-term Ventilation for Children. Perspectives of Directors of Pediatric Home Ventilation Programs.儿童长期通气决策。儿科家庭通气项目主任的观点。
Ann Am Thorac Soc. 2017 Oct;14(10):1539-1547. doi: 10.1513/AnnalsATS.201612-1002OC.
8
Children with medical complexity: creating a framework for care based on the International Classification of Functioning, Disability and Health.患有复杂疾病的儿童：基于《国际功能、残疾和健康分类》创建护理框架。
Dev Med Child Neurol. 2016 Nov;58(11):1116-1123. doi: 10.1111/dmcn.13201. Epub 2016 Sep 3.
9
Novel legislation for pediatric advance directives: surveys and focus groups capture parent and clinician perspectives.关于儿科预先指示的新立法：调查和焦点小组收集了家长和临床医生的观点。
Palliat Med. 2015 Apr;29(4):346-53. doi: 10.1177/0269216315571020. Epub 2015 Feb 10.
10
Integrating palliative care into the PICU: a report from the Improving Palliative Care in the ICU Advisory Board.将姑息治疗纳入儿科重症监护病房：重症监护病房改善姑息治疗咨询委员会的报告
Pediatr Crit Care Med. 2014 Oct;15(8):762-7. doi: 10.1097/PCC.0000000000000209.