University of Washington, Seattle, WA, USA.
Praekelt.org, Cape Town, South Africa.
Curr HIV/AIDS Rep. 2020 Oct;17(5):557-576. doi: 10.1007/s11904-020-00527-w.
Electronic communication platforms are increasingly used to support all steps of the HIV care cascade (an approach defined as eHealth). Most studies have employed individual-level approaches in which participants are connected with information, reminders, or a healthcare worker. Recent growth in use of social media platforms, which create digital communities, has created an opportunity to leverage virtual peer-to-peer connection to improve HIV prevention and care. In this article, we describe the current landscape of peer group eHealth interventions in the HIV field, based on a review of published literature, an online survey of unpublished ongoing work, and discussions with practitioners in the field in an in-person workshop.
We identified 45 published articles and 12 ongoing projects meeting our inclusion criteria. Most reports were formative or observational; only three randomized evaluations of two interventions were reported. Studies indicated that use of peer group eHealth interventions is acceptable and has unique potential to influence health behaviors, but participants reported privacy concerns. Evaluations of health outcomes of peer group eHealth interventions show promising data, but more rigorous evaluations are needed. Development of group eHealth interventions presents unique technological, practical, and ethical challenges. Intervention design must consider privacy and data sovereignty concerns, and respond to rapid changes in platform use. Innovative development of open-source tools with high privacy standards is needed.
电子通讯平台越来越多地被用于支持 HIV 护理级联的所有步骤（一种定义为电子健康的方法）。大多数研究都采用了个体层面的方法，即参与者与信息、提醒或医疗保健工作者联系。最近，社交媒体平台的使用呈指数级增长，这些平台创建了数字社区，为利用虚拟同伴对同伴的联系来改善 HIV 预防和护理提供了机会。在本文中，我们根据已发表文献的综述、对未发表的正在进行的工作的在线调查以及在面对面研讨会上与该领域从业者的讨论，描述了 HIV 领域同伴群体电子健康干预的现状。
我们确定了 45 篇符合纳入标准的已发表文章和 12 项正在进行的项目。大多数报告都是形成性或观察性的；仅报告了两项干预措施的三项随机评估。研究表明，使用同伴群体电子健康干预是可以接受的，并且具有独特的潜力来影响健康行为，但参与者报告了隐私问题。同伴群体电子健康干预的健康结果评估显示出有希望的数据，但需要更严格的评估。群体电子健康干预的开发提出了独特的技术、实际和伦理挑战。干预设计必须考虑隐私和数据主权问题，并对平台使用的快速变化做出反应。需要开发具有高隐私标准的开源工具的创新方法。
