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爱尔兰特应性皮炎患者的心理社会负担和自付费用。

Psychosocial burden and out-of-pocket costs in patients with atopic dermatitis in Ireland.

机构信息

Department of Dermatology, Tallaght University Hospital, Dublin, Ireland.

Department of Dermatology, Beaumont Hospital, Dublin, Ireland.

出版信息

Clin Exp Dermatol. 2021 Jan;46(1):157-161. doi: 10.1111/ced.14422. Epub 2020 Sep 27.

Abstract

Atopic dermatitis (AD) is one of the most common inflammatory skin diseases in the developed world, affecting 1-3% of the adult population in Europe. This inflammatory disease can have a marked impact on affected individuals, leading to significant impairment in physical wellbeing and quality of life (QoL). The aim of this study was to investigate the psychosocial impact and financial burden of AD on patients in Ireland. To increase our understanding of the psychosocial and financial aspects of AD disease burden in the Irish population, an online survey was designed. The survey was launched by the Irish Skin Foundation, and included questions focusing on disease severity, disease control, psychosocial impact, interrupted sleep, missed work and school days, and financial cost. The survey showed that the impact of AD on QoL was profound. The survey demonstrated that 85% of adults described interrupted sleep, 70% reported social anxiety, 65% avoid exercise and sports, 52% avoid social activities, 52% avoid sexual intimacy and 43% feel they are depressed as a result of their AD. Approximately one-quarter of those surveyed can spend up to €2300 annually on over-the-counter, prescription and alternative treatments. This study has shown the significant impact AD has on patients living in Ireland. It also highlights that out-of-pocket costs for patients is higher compared with previous studies across European countries.

摘要

特应性皮炎(AD)是发达国家最常见的炎症性皮肤病之一,影响欧洲成年人人口的 1-3%。这种炎症性疾病会对受影响的个体产生明显影响,导致身体福利和生活质量(QoL)显著受损。本研究旨在调查 AD 对爱尔兰患者的心理社会影响和经济负担。为了更深入地了解爱尔兰人群中 AD 疾病负担的心理社会和经济方面,设计了一项在线调查。该调查由爱尔兰皮肤基金会发起,包括关注疾病严重程度、疾病控制、心理社会影响、睡眠中断、旷工和缺课以及经济成本的问题。调查显示,AD 对 QoL 的影响是深远的。调查表明,85%的成年人描述睡眠中断,70%报告社交焦虑,65%避免运动和体育活动,52%避免社交活动,52%避免性亲密,43%因 AD 感到沮丧。大约四分之一的受访者每年在非处方、处方和替代治疗上的花费高达 2300 欧元。这项研究表明 AD 对居住在爱尔兰的患者有重大影响。它还强调,与欧洲各国以前的研究相比,患者的自付费用更高。

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