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香港特应性皮炎患儿的自我污名化:一项定性研究。

Self-stigma Among Children Living with Atopic Dermatitis in Hong Kong: a Qualitative Study.

作者信息

Xie Qian-Wen, Liang Zurong

机构信息

Department of Social Welfare and Risk Management, School of Public Affairs, Zhejiang University, Hangzhou, China.

Center of Social Welfare and Governance, Zhejiang University, Hangzhou, China.

出版信息

Int J Behav Med. 2022 Dec;29(6):775-786. doi: 10.1007/s12529-022-10059-9. Epub 2022 Feb 7.

Abstract

BACKGROUND

Stigma has been recently identified as a crucial factor associated with the psychosocial burden of those who have chronic skin diseases. The self-stigma experiences of children living with atopic dermatitis (AD) have yet to be fully investigated, and questions of how these children respond to public stigma and how AD symptoms further affect their self-stigma experiences remain unresolved. The current qualitative study aimed to (1) describe the main manifestations of self-stigma in children living with AD; (2) investigate factors that might influence their self-stigma experiences; and (3) explore the potential mechanisms underlying the impacts of AD on their psychosocial well-being from the self-stigma perspective.

METHODS

We performed a secondary analysis of the qualitative literal transcription data which were collected earlier by using the participatory, drawing-based qualitative interviews with 17 children aged 8-12 who were diagnosed with severe or moderate AD.

RESULTS

The qualitative findings indicated that the visible and invisible symptoms of AD and its management exerted unique influences on self-stigma in children living with AD, which manifested in cognitive, affective, and behavioral aspects and ultimately affected their psychosocial well-being.

CONCLUSIONS

Findings of this study allowed us to advocate for eliminating public stigma of people with skin diseases and propose recommendations for helping children living with AD relieve their self-stigma.

摘要

背景

耻辱感最近被确定为与慢性皮肤病患者心理社会负担相关的一个关键因素。患有特应性皮炎(AD)的儿童的自我耻辱经历尚未得到充分研究,这些儿童如何应对公众耻辱以及AD症状如何进一步影响他们的自我耻辱经历的问题仍未得到解决。当前的定性研究旨在:(1)描述患有AD的儿童自我耻辱的主要表现;(2)调查可能影响他们自我耻辱经历的因素;(3)从自我耻辱的角度探讨AD对其心理社会幸福感产生影响的潜在机制。

方法

我们对定性文字转录数据进行了二次分析,这些数据是之前通过对17名8至12岁被诊断为重度或中度AD的儿童进行基于绘图的参与式定性访谈收集的。

结果

定性研究结果表明,AD的可见和不可见症状及其治疗对患有AD的儿童的自我耻辱产生了独特影响,这表现在认知、情感和行为方面,最终影响了他们的心理社会幸福感。

结论

本研究结果使我们能够倡导消除对皮肤病患者的公众耻辱,并提出帮助患有AD的儿童减轻自我耻辱的建议。

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