Watchman Karen, Mattheys Kate, McKernon Michael, Strachan Heather, Andreis Federico, Murdoch Jan
Faculty of Health Sciences and Sport, University of Stirling, Stirling, FK9 4LA, UK.
J Appl Res Intellect Disabil. 2021 Jan;34(1):164-177. doi: 10.1111/jar.12795. Epub 2020 Aug 18.
Numbers of people with an intellectual disability and dementia present a global health and social challenge with associated need to reduce stress or agitation and improve quality of life in affected individuals. This study aimed to identify effectiveness of psychosocial interventions in social care settings and, uniquely, explore use of photovoice methodology to develop dialogue about dementia.
This mixed-method participatory action study used individualised goal-setting theory with 16 participants with intellectual disability and dementia, and 22 social care staff across 11 sites. Five co-researchers with intellectual disability were part of an inclusive research team collecting data using existing and bespoke tools including photovoice. Analysis used descriptive and inferential statistics and framework analysis.
Seventy four percentage of individual goals met or exceeded expectations with reduction in some "as required" medication. Qualitative findings include themes of enabling care and interventions as tools for practice. Photovoice provided insight into previously unreported fears about dementia.
Individualized psychosocial interventions have potential to reduce distress or agitation.
智障和痴呆患者的数量给全球健康和社会带来了挑战，相关需求包括减轻受影响个体的压力或焦虑，并改善其生活质量。本研究旨在确定社会护理环境中心理社会干预措施的有效性，并且独特地探索使用照片声音法来开展关于痴呆症的对话。
这项混合方法参与式行动研究采用个性化目标设定理论，涉及16名智障和痴呆患者以及11个场所的22名社会护理人员。五名智障共同研究人员是一个包容性研究团队的一部分，他们使用包括照片声音法在内的现有和定制工具收集数据。分析采用描述性和推断性统计以及框架分析。
74%的个人目标达到或超过预期，一些“按需”用药有所减少。定性研究结果包括促进护理的主题以及将干预措施作为实践工具。照片声音法揭示了以前未报告的对痴呆症的恐惧。
个性化心理社会干预措施有可能减轻痛苦或焦虑。
