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本文引用的文献

1
Agreement Between Child Self-report and Caregiver-Proxy Report for Symptoms and Functioning of Children Undergoing Cancer Treatment.儿童自我报告与照顾者代理报告在癌症治疗儿童症状和功能方面的一致性。
JAMA Pediatr. 2020 Nov 1;174(11):e202861. doi: 10.1001/jamapediatrics.2020.2861. Epub 2020 Nov 2.
2
Symptom Monitoring in Pediatric Oncology Using Patient-Reported Outcomes: Why, How, and Where Next.儿科肿瘤患者报告结局的症状监测：为何、如何及下一步方向。
Patient. 2018 Apr;11(2):147-153. doi: 10.1007/s40271-017-0279-z.
3
Overall Survival Results of a Trial Assessing Patient-Reported Outcomes for Symptom Monitoring During Routine Cancer Treatment.一项评估常规癌症治疗期间症状监测的患者报告结局的试验的总生存结果。
JAMA. 2017 Jul 11;318(2):197-198. doi: 10.1001/jama.2017.7156.
4
Exploring differences in adverse symptom event grading thresholds between clinicians and patients in the clinical trial setting.探索临床试验环境中临床医生与患者之间不良症状事件分级阈值的差异。
J Cancer Res Clin Oncol. 2017 Apr;143(4):735-743. doi: 10.1007/s00432-016-2335-9. Epub 2017 Jan 16.
5
Advancing a comprehensive cancer care agenda for children and their families: Institute of Medicine Workshop highlights and next steps.推进儿童及其家庭全面癌症护理议程：医学研究所研讨会重点和下一步。
CA Cancer J Clin. 2016 Sep;66(5):398-407. doi: 10.3322/caac.21347. Epub 2016 May 4.
6
Missing Patients' Symptoms in Cancer Care Delivery--The Importance of Patient-Reported Outcomes.癌症护理中患者症状的遗漏——患者报告结局的重要性。
JAMA Oncol. 2016 Apr;2(4):433-4. doi: 10.1001/jamaoncol.2015.4719.
7
Symptom Monitoring With Patient-Reported Outcomes During Routine Cancer Treatment: A Randomized Controlled Trial.常规癌症治疗期间通过患者报告结局进行症状监测：一项随机对照试验。
J Clin Oncol. 2016 Feb 20;34(6):557-65. doi: 10.1200/JCO.2015.63.0830. Epub 2015 Dec 7.
8
Priorities for quality care in pediatric oncology supportive care.儿科肿瘤支持性护理中的优质护理重点。
J Oncol Pract. 2015 May;11(3):187-9. doi: 10.1200/JOP.2014.002840. Epub 2015 Mar 10.
9
Improving the care of children with advanced cancer by using an electronic patient-reported feedback intervention: results from the PediQUEST randomized controlled trial.利用电子患者报告反馈干预措施改善晚期癌症儿童的护理：来自 PediQUEST 随机对照试验的结果。
J Clin Oncol. 2014 Apr 10;32(11):1119-26. doi: 10.1200/JCO.2013.51.5981. Epub 2014 Mar 10.
10
Impact of patient-reported outcomes in oncology: a longitudinal analysis of patient-physician communication.肿瘤患者报告结局的影响：一项患者-医生沟通的纵向分析。
J Clin Oncol. 2011 Jul 20;29(21):2910-7. doi: 10.1200/JCO.2010.32.2453. Epub 2011 Jun 20.

Patient-Reported Outcomes in Pediatric Oncology: The Patient Voice as a Gold Standard.

作者信息

Leahy Allison Barz, Steineck Angela

机构信息

Division of Oncology, Department of Pediatrics, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania.

Department of Pediatrics, Perelman School of Medicine, University of Pennsylvania, Philadelphia.

出版信息

JAMA Pediatr. 2020 Nov 1;174(11):e202868. doi: 10.1001/jamapediatrics.2020.2868. Epub 2020 Nov 2.

DOI:10.1001/jamapediatrics.2020.2868
PMID:32832974
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8103813/
Abstract
摘要