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2019冠状病毒病、数字隐私以及以数据为重点的公共卫生应对措施的社会限制

COVID-19, digital privacy, and the social limits on data-focused public health responses.

作者信息

Fahey Robert A, Hino Airo

机构信息

Waseda University, Japan.

出版信息

Int J Inf Manage. 2020 Dec;55:102181. doi: 10.1016/j.ijinfomgt.2020.102181. Epub 2020 Jul 1.

Abstract

The implementation of digital contact tracing applications around the world to help reduce the spread of the COVID-19 pandemic represents one of the most ambitious uses of massive-scale citizen data ever attempted. There is major divergence among nations, however, between a "privacy-first" approach which protects citizens' data at the cost of extremely limited access for public health authorities and researchers, and a "data-first" approach which stores large amounts of data which, while of immeasurable value to epidemiologists and other researchers, may significantly intrude upon citizens' privacy. The lack of a consensus on privacy protection in the contact tracing process creates risks of non-compliance or deliberate obfuscation from citizens who fear revealing private aspects of their lives - a factor greatly exacerbated by recent major scandals over online privacy and the illicit use of citizens' digital information, which have heightened public consciousness of these issues and created significant new challenges for any collection of large-scale public data. While digital contact tracing for COVID-19 remains in its infancy, the lack of consensus around best practices for its implementation and for reassuring citizens of the protection of their privacy may already have impeded its capacity to contribute to the pandemic response.

摘要

全球实施数字接触者追踪应用程序以帮助减少新冠疫情传播,这是有史以来对大规模公民数据最雄心勃勃的应用之一。然而,各国之间存在重大分歧,一种是“隐私优先”的方法,即以牺牲公共卫生当局和研究人员极为有限的访问权限为代价来保护公民数据;另一种是“数据优先”的方法,即存储大量数据,这些数据虽然对流行病学家和其他研究人员具有不可估量的价值,但可能会严重侵犯公民隐私。在接触者追踪过程中,缺乏关于隐私保护的共识,这带来了风险,即那些担心暴露其生活隐私方面的公民可能不遵守规定或故意混淆信息——最近有关在线隐私和公民数字信息非法使用的重大丑闻极大地加剧了这一因素,这些丑闻提高了公众对这些问题的认识,并给任何大规模公共数据收集带来了重大新挑战。虽然新冠疫情的数字接触者追踪仍处于起步阶段,但在实施最佳做法以及让公民放心其隐私得到保护方面缺乏共识,可能已经阻碍了其对疫情应对做出贡献的能力。

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