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评估一个基于网络的应用程序,以促进融合环境中患有神经发育障碍儿童的家庭-学校-医疗保健协作:一项非随机试验方案。

Evaluating a Web-Based Application to Facilitate Family-School-Health Care Collaboration for Children With Neurodevelopmental Disorders in Inclusive Settings: Protocol for a Nonrandomized Trial.

作者信息

Meyer Eric, Sauzéon Hélène, Saint-Supery Isabeau, Mazon Cecile

机构信息

GRHAPES (Research group on disability, accessibility and educational practices, UR 7287), Institut national supérieur de formation et de recherche pour l'éducation inclusive (INSEI), Suresnes, France.

Flowers team-project, Inria Research Center of the University of Bordeaux, Talence Cedex, France.

出版信息

JMIR Res Protoc. 2025 Apr 17;14:e63378. doi: 10.2196/63378.

DOI:10.2196/63378
PMID:40245385
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12046275/
Abstract

BACKGROUND

An individual education plan (IEP) is a key element in the support of the schooling of children with special educational needs or disabilities. The IEP process requires effective communication and strong partnership between families, school staff, and health care practitioners. However, these stakeholders often report their collaboration as limited and difficult to maintain, leading to difficulties in implementing and monitoring the child's IEP.

OBJECTIVE

This paper aims to describe the study protocol used to evaluate a technological tool (CoEd application) aiming at fostering communication and collaboration between family, school, and health care in the context of inclusive education.

METHODS

This protocol describes a longitudinal, nonrandomized controlled trial, with baseline, 3 month, and 6-month follow-up assessments. The intervention consisted of using the web-based CoEd application for 3 months to 6 months. This application is composed of a child's file in which stakeholders of the support team can share information about the child's profile, skills, aids and adaptations, and daily events. The control group is asked to function as usual to support the child in inclusive settings. To be eligible, a support team must be composed of at least two stakeholders, including at least one of the parents. Additionally, the pupil had to be aged between 10 years and 16 years, enrolled in secondary school, be taught in mainstream settings, and have an established or ongoing diagnosis of autism spectrum disorder, attention-deficit/hyperactivity disorder, or intellectual disability (IQ<70). Primary outcome measures cover stakeholders' relationships, self-efficacy, and attitudes toward inclusive education, while secondary outcome measures are related to stakeholders' burden and quality of life, as well as children's school well-being and quality of life. We plan to analyze data using ANCOVA to investigate pre-post and group effects, with a technological skills questionnaire as the covariate.

RESULTS

After screening for eligibility, 157 participants were recruited in 37 support teams, composed of at least one parent and one professional (school, health care). In September 2023, after the baseline assessment, the remaining 127 participants were allocated to the CoEd intervention (13 teams; n=82) or control condition (11 teams; n=45).

CONCLUSIONS

We expect that the CoEd application will improve the quality of interpersonal relationships in children's IEP teams (research question [RQ]1), will show benefits for the child (RQ2), and improve the well-being of the child and the stakeholders (RQ3). Thanks to the participatory design, we also expect that the CoEd application will elicit a good user experience (RQ4). The results from this study could have several implications for educational technology research, as it is the first to investigate the impacts of a technological tool on co-educational processes.

INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/63378.

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a7dd/12046275/812770e352c3/resprot_v14i1e63378_fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a7dd/12046275/aea4721442a8/resprot_v14i1e63378_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a7dd/12046275/248ef6f547e2/resprot_v14i1e63378_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a7dd/12046275/812770e352c3/resprot_v14i1e63378_fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a7dd/12046275/aea4721442a8/resprot_v14i1e63378_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a7dd/12046275/248ef6f547e2/resprot_v14i1e63378_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a7dd/12046275/812770e352c3/resprot_v14i1e63378_fig3.jpg
摘要

背景

个别教育计划(IEP)是支持有特殊教育需求或残疾儿童上学的关键要素。IEP流程要求家庭、学校工作人员和医疗保健从业者之间进行有效的沟通并建立强有力的伙伴关系。然而,这些利益相关者经常报告称他们之间的合作有限且难以维持,这导致在实施和监督儿童的IEP时遇到困难。

目的

本文旨在描述用于评估一种技术工具(CoEd应用程序)的研究方案,该工具旨在促进全纳教育背景下家庭、学校和医疗保健之间的沟通与合作。

方法

该方案描述了一项纵向、非随机对照试验,包括基线、3个月和6个月的随访评估。干预措施包括使用基于网络的CoEd应用程序3至6个月。该应用程序包含一个儿童档案,支持团队的利益相关者可以在其中分享有关儿童的个人资料、技能、辅助工具和适应情况以及日常事件的信息。对照组被要求照常开展工作以在全纳环境中支持儿童。要符合条件,一个支持团队必须由至少两名利益相关者组成,其中至少包括一名家长。此外,学生年龄必须在10岁至16岁之间,就读于中学,在主流环境中接受教育,并且已确诊或正在诊断患有自闭症谱系障碍、注意力缺陷多动障碍或智力残疾(智商<70)。主要结局指标涵盖利益相关者的关系、自我效能感以及对全纳教育的态度,而次要结局指标则与利益相关者的负担和生活质量以及儿童的学校幸福感和生活质量有关。我们计划使用协方差分析来分析数据,以调查前后变化和组间效应,将技术技能问卷作为协变量。

结果

在进行资格筛选后,37个支持团队招募了157名参与者,这些团队至少由一名家长和一名专业人员(学校、医疗保健人员)组成。2023年9月,在基线评估后,其余127名参与者被分配到CoEd干预组(13个团队;n = 82)或对照组(11个团队;n = 45)。

结论

我们预计CoEd应用程序将改善儿童IEP团队中的人际关系质量(研究问题[RQ]1),对儿童有益(RQ2),并改善儿童和利益相关者的幸福感(RQ3)。由于采用了参与式设计,我们还预计CoEd应用程序将带来良好的用户体验(RQ4)。这项研究的结果可能对教育技术研究有若干启示,因为它是首个调查技术工具对合作教育过程影响的研究。

国际注册报告标识符(IRRID):DERR1-10.2196/63378。

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