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理解父母对疾病过程的体验及其影响因素:对功能性腹痛患儿父母进行的一项为期 3 年的随访定性研究。

Understanding parents' experiences of disease course and influencing factors: a 3-year follow-up qualitative study among parents of children with functional abdominal pain.

机构信息

General Practice Research Unit, Department of Health and Society, University of Oslo, Oslo, Norway.

General Practice Research Unit, Department of Health and Society, University of Oslo, Oslo, Norway

出版信息

BMJ Open. 2020 Aug 30;10(8):e037288. doi: 10.1136/bmjopen-2020-037288.

DOI:10.1136/bmjopen-2020-037288
PMID:32868359
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7462228/
Abstract

OBJECTIVE

Functional abdominal pain is a common symptom in children and adolescents. Three years ago, we investigated the experiences among parents whose children had chronic abdominal pain but no somatic diagnosis. The aim of the present follow-up study was to explore those families' current situations.

DESIGN

Interviews with open questions about the families' current pain situations were carried out by the first author. Interviews were audio-recorded and transcribed, and subsequently analysed using descriptive content analysis.

SETTING

Urban and rural areas in two municipalities in Southern Norway.

PARTICIPANTS

Parents of children with abdominal pain who had been referred to a local hospital by their general practitioner and had been discharged without a somatic diagnosis. Fifteen parents of 14 children aged 8-17 years who had also been interviewed in 2016.

RESULTS

Nine of the children had recovered from their abdominal pain. During the pain period, the parents reported frustration with not having a diagnosis nor a specific treatment for their child's abdominal pain. The siblings in some families received less attention and were afraid that something serious might happen to their sister or brother. The parents wished that their child's school cared more about the child when they had weeks of absence. All parents maintained that their child's pain was physical, although they thought that psychological aspects might have influenced the symptoms. The parents stated that they, as well as their children, needed guidance from professionals to understand the complex pain situation.

摘要

目的

功能性腹痛是儿童和青少年的常见症状。三年前,我们调查了那些孩子患有慢性腹痛但没有躯体诊断的父母的经历。本随访研究的目的是探讨这些家庭的现状。

设计

由第一作者对家庭当前的疼痛情况进行开放式问题访谈。访谈进行了录音和转录,并使用描述性内容分析进行了分析。

地点

挪威南部两个直辖市的城乡地区。

参与者

由全科医生转诊至当地医院且未被诊断为躯体疾病而出院的腹痛儿童的父母。15 名父母,他们的 14 名 8-17 岁的孩子曾于 2016 年接受过访谈。

结果

9 名儿童腹痛已缓解。在疼痛期间,父母们对孩子的腹痛既没有诊断也没有特定的治疗方法感到沮丧。一些家庭的兄弟姐妹得到的关注较少,他们担心他们的姐妹或兄弟会发生严重的事情。当孩子缺课数周时,父母希望他们孩子的学校更加关心孩子。所有父母都坚持认为他们孩子的疼痛是身体上的,尽管他们认为心理方面可能影响了症状。父母们表示,他们和他们的孩子都需要专业人士的指导,以了解复杂的疼痛情况。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/60a0/7462228/64faa81b033f/bmjopen-2020-037288f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/60a0/7462228/64faa81b033f/bmjopen-2020-037288f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/60a0/7462228/64faa81b033f/bmjopen-2020-037288f01.jpg

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