Le Anne, Dick Bruce R, Spiers Jude, Reid Kathy, Scott Shannon D
Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada.
Department of Anesthesiology and Pain Medicine, University of Alberta, Edmonton, Alberta, Canada.
Can J Pain. 2019 Feb 22;3(1):20-32. doi: 10.1080/24740527.2019.1577679. eCollection 2019.
: Pediatric chronic pain affects 15%-39% of children. Chronic pain can have significant negative effects on a child's physical functioning, psychological and cognitive functioning, quality of life, and social functioning. Parents of children with chronic pain have reported being affected by their child's condition. There have been few studies exploring the experiences of parents of children with chronic pain through a qualitative descriptive lens. : Thirteen parents from a pediatric chronic pain clinic participated in semistructured interviews. Concurrent data collection and analysis occurred to allow for follow-up of ideas that emerged during analysis. Three phases of analysis occurred: coding, categorizing, and developing themes. : Three themes were developed: (1) Parents' emotional journey; (2) chronic pain affects the entire family; and (3) social support is critical. Parents described emotions caused by the arduous process of obtaining a chronic pain diagnosis, followed by difficulties finding strategies to help their child manage the pain. Family life was affected because special accommodations often had to be made. Families were affected financially, incurring costs due to time off of work or additional therapies. Finally, parents stressed the importance of a strong social support network to provide assistance and flexibility for the changing needs of their child. : This research identified a better understanding of the impact of pediatric chronic pain on parents. These findings can be used to provide and promote more effective treatments and education to improve the psychological, physical, and social well-being of children with pediatric chronic pain and their families.
小儿慢性疼痛影响15% - 39%的儿童。慢性疼痛会对儿童的身体机能、心理和认知功能、生活质量以及社交功能产生重大负面影响。患有慢性疼痛的儿童的父母报告称自己受到孩子病情的影响。很少有研究从定性描述的角度探讨患有慢性疼痛的儿童的父母的经历。
来自一家儿科慢性疼痛诊所的13名家长参与了半结构化访谈。同时进行数据收集和分析，以便对分析过程中出现的想法进行跟进。分析过程分为三个阶段：编码、分类和提炼主题。
(1) 父母的情感历程；(2) 慢性疼痛影响整个家庭；(3) 社会支持至关重要。父母们描述了在获得慢性疼痛诊断这一艰难过程中产生的情绪，随后在寻找帮助孩子应对疼痛的策略时遇到困难。家庭生活受到影响，因为常常需要做出特殊安排。家庭在经济上受到影响，因误工或额外治疗而产生费用。最后，父母们强调了强大的社会支持网络对于满足孩子不断变化的需求提供帮助和灵活性的重要性。
这项研究明确了对小儿慢性疼痛对父母影响的更好理解。这些研究结果可用于提供和推广更有效的治疗方法及教育，以改善患有小儿慢性疼痛的儿童及其家庭的心理、身体和社会福祉。
