The Chinese University of Hong Kong, New Territory, Hong Kong.
Chung Chi College, The Chinese University of Hong Kong, Rm. 613, Sino Building, Sha Tin, New Territory, Hong Kong.
J Autism Dev Disord. 2021 Jun;51(6):1883-1893. doi: 10.1007/s10803-020-04681-3.
Guided by Pals' (in: McStay (ed) Identity and story: Creating self in narrative, American Psychological Association, Washington DC, 2006) model of self-making through a narrative lens in the context of adversity, this study investigated not only the difficulties but also the personal growth that parents have experienced while participating in the interventions with their children with autism spectrum disorder (ASD) in mainland China. Based on interviews with 16 purposively sampled parents, thematic analysis revealed themes concerning the parents' acknowledgment of stressful events and their emotional reactions, meanings of their experiences constructed through causal connections, and outcomes of their perceived improvement in self-understanding, parent-child relationships, and philosophies on life. Largely consistent with this theoretical model, such findings highlight the uniqueness of the personal growth process of parents of children with ASD in China's sociocultural context.
本研究以麦克斯泰(in:麦克斯泰(ed)身份与故事:通过叙事视角创造自我,美国心理协会,华盛顿特区,2006)通过叙事镜头进行自我塑造的模式为指导,在中国内地参与自闭症谱系障碍(ASD)儿童干预的过程中,不仅调查了父母所经历的困难,还调查了他们的个人成长。基于对 16 名有针对性抽样的父母的访谈,主题分析揭示了与父母对压力事件的认识和他们的情绪反应、通过因果关系构建的经验意义以及他们对自我理解、亲子关系和生活哲学的改善的看法有关的主题。与这一理论模型基本一致的是,这些发现突出了中国社会文化背景下 ASD 儿童父母的个人成长过程的独特性。