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家长对自闭症谱系障碍儿童的个人成长体验。

Personal Growth Experiences of Parents to Children with Autism Spectrum Disorder.

机构信息

Department of Psychology, Bar-Ilan University, 5290002, Ramat-Gan, Israel.

Department of Psychology and The Mind Institute, University of California, Davis, Davis, CA, USA.

出版信息

J Autism Dev Disord. 2019 Apr;49(4):1330-1341. doi: 10.1007/s10803-018-3784-6.

Abstract

Experiences of parenting a child with Autism Spectrum Disorder (ASD) have mostly been studied in relation to hardship. The current study explored personal growth experiences of Israeli parents to children with ASD, specifically in relation to Tedeschi and Calhoun's crisis-related growth model. Nineteen parents were interviewed, and qualitative categorical content analysis was performed. Four major growth themes emerged: Empowerment and personal strength, Existential perspective/spiritual-emotional experience, Interpersonal and Expertise, professional or political involvement. Themes were largely consistent with the crisis-related growth model, with some being unique to the current subject of inquiry. Findings indicated growth might occur differently in different cultures. Clinically, with some parents, the focus regarding the parenting of their child with ASD should be shifted from adjustment to growth.

摘要

养育自闭症谱系障碍(ASD)儿童的经历大多与困难有关。本研究探讨了以色列父母在与泰德eschi 和卡尔霍恩的危机相关成长模式有关的情况下,对子女的个人成长经历。对 19 名家长进行了访谈,并进行了定性分类内容分析。出现了四个主要的成长主题:赋权和个人力量、存在主义视角/精神情感体验、人际关系和专业知识、专业或政治参与。这些主题与危机相关的成长模式基本一致,有些主题是当前研究主题所特有的。研究结果表明,成长在不同文化中可能会有所不同。从临床角度来看,对于一些父母来说,他们对自闭症儿童的养育重点应该从调整转移到成长上来。

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