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在脆弱中寻找力量:在对弱势群体进行研究时的伦理方法。

Finding Strength in Vulnerability: Ethical Approaches when Conducting Research with Vulnerable Populations.

机构信息

College of Nursing - Lincoln Division, University of Nebraska Medical Center, Lincoln, Nebraska.

College of Education and Human Sciences, University of Nebraska, Lincoln, Nebraska.

出版信息

J Midwifery Womens Health. 2020 Nov;65(6):802-807. doi: 10.1111/jmwh.13151. Epub 2020 Sep 3.

Abstract

Researchers who desire to make positive changes for vulnerable populations often conduct problem-focused studies. Although problem-focused research is important, when such studies are not carefully designed, their results can contribute to a deficit discourse. A deficit discourse is a narrative that describes the person through a myopic lens of negativity characterized only by illness, death, depression, failure, or the like. Deficit discourse negatively affects how health care providers and society interact with vulnerable people. This article discusses deficit discourse in health care and strengths-based research: an ethical approach to working with vulnerable individuals in research settings and a strategy to overcome deficit discourse. Strengths-based research approaches balance risks with countermeasures that include areas that are positive and amenable to growth or intervention. Strengths-based research can be conducted using qualitative, quantitative, or mixed-methods methodology. Strengths-based research should be culturally relevant and population-specific, often including the individuals of study throughout the process. By modifying the research approach, critical problems can be identified and addressed while also emphasizing positive ways to empower individuals and improve their lives. Additionally, these changes better the way researchers and health care providers view and care for people while also challenging deficit discourses in society at large.

摘要

研究人员如果希望为弱势群体带来积极的改变,通常会进行以问题为中心的研究。虽然以问题为中心的研究很重要,但如果设计不当,其结果可能会导致缺陷话语的出现。缺陷话语是一种通过狭隘的消极视角来描述人的叙述,只关注疾病、死亡、抑郁、失败等。缺陷话语会对医疗保健提供者和社会与弱势群体的互动方式产生负面影响。本文讨论了医疗保健中的缺陷话语和基于优势的研究:这是一种在研究环境中与弱势群体合作的伦理方法,也是克服缺陷话语的一种策略。基于优势的研究方法在风险和对策之间取得平衡,对策包括积极的、可促进成长或干预的领域。基于优势的研究可以采用定性、定量或混合方法进行。基于优势的研究应该具有文化相关性和特定于人群的特点,通常包括研究过程中的个体。通过改变研究方法,可以识别和解决关键问题,同时强调赋予个人权力和改善其生活的积极方式。此外,这些变化可以改善研究人员和医疗保健提供者对人的看法和护理方式,同时也挑战整个社会中的缺陷话语。

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