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支持对访谈记录进行分析的数据和数据插图,这些访谈探讨了年轻男性及其父母/监护人对睾丸健康的看法和经历。

Data and data illustrations supporting the analysis of transcripts from interviews exploring the views and experiences of young men and their parents/guardians regarding testicular health.

作者信息

MacDonald Caroline, Burton Maria, Carachi Robert, O'Toole Stuart

机构信息

School of MVLS, University of Glasgow, University Avenue, Glasgow G12 8QQ, United Kingdom.

Royal Hospital for Children, 1345 Govan Rd, Glasgow G51 4TF, United Kingdom.

出版信息

Data Brief. 2020 Aug 4;32:106106. doi: 10.1016/j.dib.2020.106106. eCollection 2020 Oct.

DOI:10.1016/j.dib.2020.106106
PMID:32885003
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7453114/
Abstract

Evidence shows young men have poor outcomes from testicular torsion directly attributable to delay in presentation to hospital [1]. Only a third to a half of adolescents present within 6 h with testicular pain, [2,3] There is poor understanding of why adolescents delay in presenting with testicular pain. The authors started without an a-priori hypothesis and designed a thematic qualitative research protocol to explore the phenomena is a naturalistic setting [4,5] . Sixteen young men (11-19 years) and their parents or guardians underwent semi-structured interviews, directed by a topic guide which evolved with subsequent interview findings. Young men were recruited from out of school clubs to minimise the bias associated with schools or hospital recruitment, and were naïve to testicular disease. Verbatim transcriptions were coded, categories and themes formed and final concepts derived utilising a framework methodology. The figure included shows the initial topic guide. The data tables presented show the emergent themes and the final code book. The authors have utilised the analysis to explore the factors impeding young men in presenting early to hospital with testicular pain [6]. The authors feel the data tables and raw data will be of interest to other researchers interested in adolescent health, health access, public health, linguistics and healthcare qualitative methodology.

摘要

有证据表明,年轻男性睾丸扭转的预后较差,这直接归因于他们延迟前往医院就诊[1]。只有三分之一到一半的青少年在出现睾丸疼痛6小时内就医,[2,3]对于青少年为何延迟就医,人们了解甚少。作者并未预先设定假设,而是设计了一个主题定性研究方案,在自然环境中探究这一现象[4,5]。16名年龄在11至19岁的年轻男性及其父母或监护人接受了半结构化访谈,访谈由一份主题指南引导,该指南根据后续访谈结果不断完善。从校外俱乐部招募年轻男性,以尽量减少与学校或医院招募相关的偏差,且他们对睾丸疾病并不了解。访谈内容逐字记录、编码,形成类别和主题,并运用框架方法得出最终概念。所展示的图表为初始主题指南。所呈现的数据表显示了浮现的主题和最终编码手册。作者利用该分析探究了阻碍年轻男性早期因睾丸疼痛前往医院就诊的因素[6]。作者认为,这些数据表和原始数据将对其他关注青少年健康、医疗服务可及性、公共卫生、语言学和医疗保健定性方法的研究人员有吸引力。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cd2e/7453114/f05413641d46/gr1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cd2e/7453114/f05413641d46/gr1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cd2e/7453114/f05413641d46/gr1.jpg

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本文引用的文献

1
Why adolescents delay with presentation to hospital with acute testicular pain: A qualitative study.为什么青少年会延迟出现急性睾丸痛并到医院就诊:一项定性研究。
J Pediatr Surg. 2021 Mar;56(3):614-619. doi: 10.1016/j.jpedsurg.2020.06.041. Epub 2020 Jul 9.
2
A systematic review and meta-analysis revealing realistic outcomes following paediatric torsion of testes.一项系统回顾和荟萃分析揭示了儿童睾丸扭转后的真实结局。
J Pediatr Urol. 2018 Dec;14(6):503-509. doi: 10.1016/j.jpurol.2018.09.017. Epub 2018 Oct 5.
3
Informing a priori Sample Size Estimation in Qualitative Concept Elicitation Interview Studies for Clinical Outcome Assessment Instrument Development.
在为临床结局评估工具开发而进行定性概念发掘访谈研究中,进行事先告知的样本量估计。
Value Health. 2018 Jul;21(7):839-842. doi: 10.1016/j.jval.2017.11.014. Epub 2018 Mar 7.
4
Evaluation of acute scrotum in our consecutive operated cases: a one-center study.连续手术病例中急性阴囊的评估:单中心研究。
Int J Gen Med. 2014 Jan 15;7:75-8. doi: 10.2147/IJGM.S52413. eCollection 2014.
5
Using the framework method for the analysis of qualitative data in multi-disciplinary health research.运用多学科健康研究中定性数据分析的框架方法。
BMC Med Res Methodol. 2013 Sep 18;13:117. doi: 10.1186/1471-2288-13-117.
6
Testicular torsion: a 15-year single-centre clinical and histological analysis.睾丸扭转:15 年单中心临床与组织学分析。
Acta Paediatr. 2012 Jul;101(7):e282-6. doi: 10.1111/j.1651-2227.2012.02644.x. Epub 2012 Mar 24.
7
Qualitative data analysis: the framework approach.定性数据分析:框架法
Nurse Res. 2011;18(2):52-62. doi: 10.7748/nr2011.01.18.2.52.c8284.