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Pediatric NUT-midline carcinoma: Therapeutic success employing a sarcoma based multimodal approach.儿童 NUT 中线癌：采用基于肉瘤的多模式方法治疗成功。
Pediatr Hematol Oncol. 2017 May;34(4):231-237. doi: 10.1080/08880018.2017.1363839. Epub 2017 Oct 17.
4
NUT carcinoma in children and adults: A multicenter retrospective study.儿童和成人的NUT癌：一项多中心回顾性研究。
Pediatr Blood Cancer. 2017 Dec;64(12). doi: 10.1002/pbc.26693. Epub 2017 Jun 23.
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Do Pediatric Patients Have a Right to Know?儿科患者有权了解情况吗？
AMA J Ethics. 2017 May 1;19(5):426-435. doi: 10.1001/journalofethics.2017.19.5.ecas2-1705.
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Identifying a conceptual shift in child and adolescent-reported treatment decision making: "Having a say, as I need at this time".确定儿童和青少年报告的治疗决策中的概念转变：“在我此时需要的时候，有发言权”。
Pediatr Blood Cancer. 2017 Apr;64(4). doi: 10.1002/pbc.26262. Epub 2016 Nov 5.
7
Ethics, Emotions, and the Skills of Talking About Progressing Disease With Terminally Ill Adolescents: A Review.伦理、情感与与晚期青少年谈论疾病进展的技巧：综述
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Prognostic Disclosures to Children: A Historical Perspective.向儿童披露预后情况：历史视角
Pediatrics. 2016 Sep;138(3). doi: 10.1542/peds.2016-1278. Epub 2016 Aug 25.
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Informed Consent in Decision-Making in Pediatric Practice.知情同意在儿科实践中的决策制定。
Pediatrics. 2016 Aug;138(2). doi: 10.1542/peds.2016-1485.
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The Truth about Truth-Telling in American Medicine: A Brief History.美国医学中如实告知的真相：简史
Perm J. 2016 Summer;20(3):15-219. doi: 10.7812/TPP/15-219. Epub 2016 Jun 22.

To Disclose or Not to Disclose: A Case Highlighting the Challenge of Conflicts in Pediatric Disclosure.

作者信息

Martinez Isaac, Hoppmann Anna, Perna Sam, Byrd Paul, Wolfe Joanne, Aye Jamie, Johnston Emily E

机构信息

Department of Pediatrics, University of Alabama at Birmingham, Birmingham, Alabama, USA; Institute for Cancer Outcomes and Survivorship, University of Alabama at Birmingham, Birmingham, Alabama, USA.

Department of Pediatrics, University of Alabama at Birmingham, Birmingham, Alabama, USA; Department of Palliative and Supportive Care, University of Alabama at Birmingham, Birmingham, Alabama, USA.

出版信息

J Pain Symptom Manage. 2021 Jan;61(1):211-215. doi: 10.1016/j.jpainsymman.2020.07.042. Epub 2020 Sep 2.

DOI:10.1016/j.jpainsymman.2020.07.042
PMID:32890630
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8097844/
Abstract
摘要