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本文引用的文献

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Men's view on participation in decisions about prostate-specific antigen (PSA) screening: patient and public involvement in development of a survey.男性对参与前列腺特异性抗原 (PSA) 筛查决策的看法:患者和公众参与调查制定。
BMC Med Inform Decis Mak. 2020 Apr 6;20(1):65. doi: 10.1186/s12911-020-1077-4.
2
The Effect of Shared Decisionmaking on Patients' Likelihood of Filing a Complaint or Lawsuit: A Simulation Study.共享决策对患者提出投诉或诉讼可能性的影响:一项模拟研究。
Ann Emerg Med. 2019 Jul;74(1):126-136. doi: 10.1016/j.annemergmed.2018.11.017. Epub 2019 Jan 3.
3
Patient and physician view on patient information and decision-making in congenital aortic and pulmonary valve surgery.患者和医生对先天性主动脉瓣和肺动脉瓣手术中患者信息和决策的看法。
Open Heart. 2018 Nov 10;5(2):e000872. doi: 10.1136/openhrt-2018-000872. eCollection 2018.
4
Screening for Prostate Cancer: US Preventive Services Task Force Recommendation Statement.前列腺癌筛查:美国预防服务工作组推荐声明。
JAMA. 2018 May 8;319(18):1901-1913. doi: 10.1001/jama.2018.3710.
5
Decisional control preferences among patients with advanced cancer: An international multicenter cross-sectional survey.晚期癌症患者的决策控制偏好:一项国际多中心横断面调查。
Palliat Med. 2018 Apr;32(4):870-880. doi: 10.1177/0269216317747442. Epub 2017 Dec 13.
6
The impact of prostate cancer diagnosis and treatment decision-making on health-related quality of life before treatment onset.治疗前前列腺癌诊断和治疗决策对健康相关生活质量的影响。
Support Care Cancer. 2018 Apr;26(4):1297-1304. doi: 10.1007/s00520-017-3953-8. Epub 2017 Nov 10.
7
Influence of Men's Personality and Social Support on Treatment Decision-Making for Localized Prostate Cancer.男性人格特质与社会支持对局限性前列腺癌治疗决策的影响
Biomed Res Int. 2017;2017:1467056. doi: 10.1155/2017/1467056. Epub 2017 Jul 12.
8
Who wants to be involved in health care decisions? Comparing preferences for individual and collective involvement in England and Sweden.谁希望参与医疗保健决策?比较英国和瑞典对个人参与和集体参与的偏好。
BMC Public Health. 2017 Jul 14;18(1):18. doi: 10.1186/s12889-017-4534-y.
9
What are the decision-making preferences of patients in vascular surgery? A mixed-methods study.血管外科患者的决策偏好是什么?一项混合方法研究。
BMJ Open. 2017 Feb 10;7(2):e013272. doi: 10.1136/bmjopen-2016-013272.
10
EAU-ESTRO-SIOG Guidelines on Prostate Cancer. Part 1: Screening, Diagnosis, and Local Treatment with Curative Intent.EAU-ESTRO-SIOG 前列腺癌诊治指南。第 1 部分:筛查、诊断及有治愈意图的局部治疗。
Eur Urol. 2017 Apr;71(4):618-629. doi: 10.1016/j.eururo.2016.08.003. Epub 2016 Aug 25.

在线医疗决策调查中的人格代表性和参与偏好。

Representativeness of personality and involvement preferences in a web-based survey on healthcare decision-making.

机构信息

Department of Clinical Research, University of Southern Denmark and Open Patient data Explorative Network, Odense University Hospital, J. B. Winsløws Vej 9 a, 3. floor, DK-5000, Odense C, Denmark.

MGH Division of General Internal Medicine & Harvard Medical School, Boston, USA.

出版信息

BMC Health Serv Res. 2020 Sep 10;20(1):851. doi: 10.1186/s12913-020-05717-1.

DOI:10.1186/s12913-020-05717-1
PMID:32912191
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7488239/
Abstract

BACKGROUND

Obtaining a sample that is representative of the group of interest is of utmost importance in questionnaire studies. In a survey using a state authorized web-portal for citizen communication with authorities, we wanted to investigate the view of adult men on patient involvement in health care decision-making regarding Prostate-Specific Antigen test for prostatic cancer. In this paper, we report on sample characteristics and representativeness of our sample in terms of personality and baseline involvement preferences.

METHODS

We compared personality profiles (BFI-10) and baseline healthcare decision-making preferences (CPS) in our sample (n = 6756) to internationally available datasets. Pooled data from a) US, UK, Canada, Australia, and New Zealand (n = 1512), b) Germany, Netherlands, Switzerland, and Belgium (n = 1136), and c) Norway, Sweden, Finland, and Denmark (n = 1313) were used for BFI-10 comparisons. Regarding CPS, we compared our sample with three previous datasets relating to decision-making in cancer (n = 425, 387, and 199).

RESULTS

Although statistically significant differences particularly appeared in large dataset comparisons, sample BFI-10 and CPS profiles mostly were within the range of those previously reported. Similarity was greatest in BFI-10 comparisons with group a) where no statistically significant difference could be established in factors 'agreeableness' and 'neuroticism' (p = .095 and .578, respectively).

CONCLUSION

Despite some variation, our sample displays personality and baseline preference profiles that are generally similar to those described in previous international studies. For example, this was the case with the BFI-10 'agreeableness' measure (incl. trust and fault-finding items), an important factor in healthcare decision-making.

摘要

背景

在问卷调查研究中,获得具有代表性的样本至关重要。在一项使用国家授权的公民与当局沟通网络门户进行的调查中,我们希望调查成年男性对前列腺癌 PSA 检测中患者参与医疗决策的看法。本文报告了我们样本的特征和代表性,包括人格和基线参与偏好。

方法

我们比较了我们的样本(n=6756)的人格特征(BFI-10)和基线医疗决策偏好(CPS)与国际上可用的数据集。使用来自 a)美国、英国、加拿大、澳大利亚和新西兰(n=1512)、b)德国、荷兰、瑞士和比利时(n=1136)和 c)挪威、瑞典、芬兰和丹麦(n=1313)的 pooled 数据进行 BFI-10 比较。关于 CPS,我们将我们的样本与三个以前关于癌症决策的数据集进行了比较(n=425、387 和 199)。

结果

尽管在大型数据集比较中出现了统计学上的显著差异,但样本的 BFI-10 和 CPS 特征大多在以前报告的范围内。在与组 a)的 BFI-10 比较中,相似性最大,其中“宜人性”和“神经质”这两个因素没有统计学上的显著差异(p=0.095 和.578,分别)。

结论

尽管存在一些差异,但我们的样本显示出的人格和基线偏好特征与以前的国际研究中描述的大致相似。例如,BFI-10 的“宜人性”测量(包括信任和挑剔项目)就是这种情况,这是医疗决策中的一个重要因素。