Johns Hopkins Bloomberg School of Public Health, Department of Mental Health, United States.
Johns Hopkins Bloomberg School of Public Health, Department of Mental Health, United States.
Res Social Adm Pharm. 2021 Jun;17(6):1110-1118. doi: 10.1016/j.sapharm.2020.08.011. Epub 2020 Aug 25.
Youth of color from low-income urban communities are crucial participants in research, as their involvement can shape effective, culturally responsive interventions and policy to promote youth health and well-being. These young people, however, are an often-neglected research population, due in part to perceived challenges associated with their inclusion as well as marginalized communities' justifiable mistrust of research.
Based on our experience conducting a school-based randomized intervention trial in Baltimore, Maryland, we present strategies for conducting research with low-income, urban youth of color. We discuss strategies in three domains: university-community partnership development, participant recruitment, and participant retention.
We reviewed partnership building and recruitment strategies employed by our team across four years of trial implementation and evaluated success of participant retention at our final survey timepoint.
Partnership building was facilitated by selection of a study design that maximized benefits for all participants, promotion of capacity building at partner institutions, and attention to research staff hiring and training practices. Effective study recruitment strategies included personal contact with parents and close cooperation between school personnel and study staff. Providing incentives and collecting multiple types of participant contact information contributed to increased retention rates. On average, those who participated in the final survey timepoint were less likely to be male and Latinx and exhibited more favorable baseline mental health than those who did not, suggesting differential attrition based on youth characteristics.
Lessons learned from this school-based trial can be applied more broadly to research with low-income urban youth of color. Researchers should strive to maximize scientific rigor, minimize harm to vulnerable adolescents and their communities, promote positive research experiences for young people, and provide concrete benefits to those who participate.
来自低收入城市社区的有色人种青年是研究的关键参与者,因为他们的参与可以塑造有效的、文化响应的干预措施和政策,以促进青年的健康和福祉。然而,这些年轻人是一个经常被忽视的研究人群,部分原因是他们被认为存在参与研究的相关挑战,以及边缘化社区对研究的合理不信任。
基于我们在马里兰州巴尔的摩市进行一项基于学校的随机干预试验的经验,我们提出了与低收入、城市有色人种青年进行研究的策略。我们在三个领域讨论了这些策略:大学-社区伙伴关系的发展、参与者的招募和参与者的保留。
我们回顾了我们的团队在四年试验实施过程中采用的伙伴关系建立和招募策略,并评估了在最后一次调查时间点参与者保留的成功情况。
伙伴关系的建立是通过选择一种最大限度地为所有参与者带来利益的研究设计来促进的,还通过促进合作伙伴机构的能力建设,并关注研究人员的招聘和培训实践来促进的。有效的研究招募策略包括与家长的直接接触,以及学校人员和研究人员之间的密切合作。提供激励措施和收集多种类型的参与者联系信息有助于提高保留率。平均而言,那些参加最后一次调查时间点的人不太可能是男性和拉丁裔,并且他们的基线心理健康状况比那些没有参加的人更有利,这表明基于青年特征的不同的参与者流失率。
从这项基于学校的试验中吸取的经验教训可以更广泛地应用于对低收入城市有色人种青年的研究。研究人员应努力最大限度地提高科学严谨性,将对弱势青少年及其社区的伤害降到最低,为年轻人提供积极的研究体验,并为参与者提供具体的利益。