Halstead Elizabeth J, Leavitt Victoria M, Fiore Damian, Mueser Kim T
Healios LLC, Basel, Switzerland.
Translational Cognitive Neuroscience Laboratory, Columbia University Irving Medical Center, New York, NY.
Mult Scler J Exp Transl Clin. 2020 Aug 21;6(3):2055217320941250. doi: 10.1177/2055217320941250. eCollection 2020 Jul-Sep.
Resilience is a protective factor that emerges when individuals are faced with challenges and stressors. Multiple sclerosis (MS) is a chronic neurological disease that introduces a great deal of stress for the individual and his/her support partner. We designed a telehealth resilience-building dyadic program for persons with MS (PwMS) and their support partners.
To evaluate the feasibility of the resilience intervention. The secondary objective was to assess the benefits of the intervention.
Sixty-two participants ( = 49.5 years, 31 dyads of PwMS) and support partners) were recruited to participate. Out of the 31 dyads, 26 were spouses, 2 were cohabiting partners, and 3 were parent-child dyads.
The feasibility goals of the intervention were met, as determined by high participant satisfaction and acceptable completion rates. Preliminary outcomes relating to resilience were positive, suggesting that this intervention had a positive impact on participants.
To the best of our knowledge, this is the first resilience-building intervention delivered via telehealth for both PwMS and their support partners. The study showed an increase in resilience-building skills for addressing the challenges faced by PwMS and their support partners. These skills can be promoted and taught, clinically supported by telehealth, an affordable, accessible healthcare solution. Trial Registration at ClinicalTrials.gov (NCT03555253).
复原力是个体面对挑战和压力源时出现的一种保护因素。多发性硬化症（MS）是一种慢性神经疾病，给患者及其支持伴侣带来极大压力。我们为多发性硬化症患者（PwMS）及其支持伴侣设计了一个远程医疗复原力建设二元项目。
评估复原力干预措施的可行性。次要目的是评估该干预措施的益处。
招募了62名参与者（平均年龄49.5岁，31对PwMS患者及其支持伴侣）。在这31对中，26对是配偶，2对是同居伴侣，3对是亲子关系。
通过高参与者满意度和可接受的完成率确定，干预措施的可行性目标得以实现。与复原力相关的初步结果是积极的，表明该干预措施对参与者有积极影响。
据我们所知，这是首个通过远程医疗为PwMS患者及其支持伴侣提供的复原力建设干预措施。该研究表明，应对PwMS患者及其支持伴侣所面临挑战的复原力建设技能有所提高。这些技能可以通过远程医疗在临床支持下得到推广和传授，远程医疗是一种经济实惠、易于获得的医疗保健解决方案。在ClinicalTrials.gov上进行试验注册（NCT03555253）。
