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对多发性硬化症患者照顾者的支持性干预措施:一项系统综述。

Supportive Interventions for Caregivers of Individuals With Multiple Sclerosis: A Systematic Review.

作者信息

Hoseinpour Fatemeh, Ghahari Setareh, Motaharinezhad Fatemeh, Binesh Maryam

机构信息

From the Department of Occupational Therapy, School of Rehabilitation Sciences, Semnan University of Medical Sciences, Semnan, Iran (FH, MB).

School of Rehabilitation Therapy, Queen's University, Kingston, Ontario, Canada (SG).

出版信息

Int J MS Care. 2023 Nov-Dec;25(6):266-272. doi: 10.7224/1537-2073.2022-083. Epub 2023 Nov 8.

Abstract

BACKGROUND

Caregivers of individuals with multiple sclerosis (MS) are key members of the treatment team. Their needs and challenges should be met as interventions can be effective in improving not only their own health, well-being, and quality of life but also that of those they care for. The aim of this systematic review was to investigate supportive interventions for caregivers of individuals with MS.

METHODS

We conducted a database search of PubMed, Google Scholar, Science Direct, Scopus, and the Cochrane Library from 2000 to 2021. English-language studies that examined interventions administered directly to caregivers of individuals with MS and evaluated various outcomes were included. The Downs and Black checklist was used to assess the methodological quality of included studies.

RESULTS

Twenty of 367 relevant papers fit the eligibility criteria outlined in the methods of this study and were subsequently selected for this review. Of the included studies, there was a notable variance in key characteristics such as methods, outcome measures, sample size, and procedures. Supportive interventions, psychoeducational group interventions, and behavioral-adaptive therapies were the 3 main categories of interventions reviewed; however, each study had a significant correlation between the intervention and outcomes.

CONCLUSIONS

Despite the small sample size in this study, this review showed that various intervention models that target caregivers of individuals with MS have been successful.

摘要

背景

多发性硬化症(MS)患者的护理人员是治疗团队的关键成员。他们的需求和挑战应得到满足,因为干预措施不仅可以有效改善他们自身的健康、幸福感和生活质量,还能改善他们所照顾者的健康、幸福感和生活质量。本系统评价的目的是调查针对MS患者护理人员的支持性干预措施。

方法

我们对2000年至2021年期间的PubMed、谷歌学术、科学Direct、Scopus和Cochrane图书馆进行了数据库搜索。纳入了以英文发表的研究,这些研究考察了直接针对MS患者护理人员实施的干预措施,并评估了各种结果。采用唐斯和布莱克清单来评估纳入研究的方法学质量。

结果

367篇相关论文中有20篇符合本研究方法中概述的纳入标准,随后被选入本评价。在纳入的研究中,方法、结果测量、样本量和程序等关键特征存在显著差异。支持性干预、心理教育团体干预和行为适应性疗法是所审查的3类主要干预措施;然而,每项研究的干预措施与结果之间都存在显著相关性。

结论

尽管本研究样本量较小,但该评价表明,针对MS患者护理人员的各种干预模式已取得成功。

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