University of Skövde, Sweden.
Örebro University School of Business, Sweden.
Health Informatics J. 2020 Dec;26(4):2915-2929. doi: 10.1177/1460458220944727. Epub 2020 Sep 11.
This study investigates differences in attitudes towards, and experiences with, online electronic health records between cancer patients and patients with other conditions, highlighting what is characteristic to cancer patients. A national patient survey on online access to electronic health records was conducted, where cancer patients were compared with all other respondents. Overall, 2587 patients completed the survey (response rate 0.61%). A total of 347 respondents (13.4%) indicated that they suffered from cancer. Results showed that cancer patients are less likely than other patients to use online electronic health records due to general interest (p < 0.001), but more likely for getting an overview of their health history (p = 0.001) and to prepare for visits (p < 0.001). Moreover, cancer patients rate benefits of accessing their electronic health records online higher than other patients and see larger positive effects regarding improved communication with and involvement in healthcare.
本研究调查了癌症患者与其他疾病患者在使用在线电子健康记录方面的态度和体验差异,突出了癌症患者的特点。一项关于在线访问电子健康记录的全国患者调查中,将癌症患者与所有其他受访者进行了比较。共有 2587 名患者完成了调查(响应率为 0.61%)。共有 347 名受访者(13.4%)表示他们患有癌症。结果表明,由于普遍兴趣(p<0.001),癌症患者不太可能像其他患者那样使用在线电子健康记录,但更有可能查看他们的健康史概述(p=0.001)并为就诊做准备(p<0.001)。此外,癌症患者认为在线访问电子健康记录的好处高于其他患者,并认为在改善与医疗保健的沟通和参与方面有更大的积极影响。