Faculty of Nursing, University of Navarre, Campus Universitario s/n, 31009, Pamplona, Navarre, Spain.
National Centre of Epidemiology, Institute of Health Carlos III and CIBERNED, Madrid, Spain.
BMC Neurol. 2020 Sep 15;20(1):346. doi: 10.1186/s12883-020-01926-7.
Neurologists play an essential role in facilitating the patient's process of living with Parkinson's disease (PD). The Living with Chronic Illness Scale-PD (LW-CI-PD) is a unique available clinical tool that evaluates how the patient is living with PD. The objective of the study was to analyse the LW-CI-PD properties according to the Rasch model.
An open, international, cross-sectional study was carried out in 324 patients with Parkinson's disease from four Latin American countries and Spain. Psychometric properties of the LW-CI-PD were tested using Rasch analysis: fit to the Rasch model, item local independency, unidimensionality, reliability, and differential item functioning by age and gender.
Original LW-CI-PD do not fit Rasch model. Modifications emerged included simplifying the response scale and deleting misfit items, the dimensions Acceptance, Coping and Integration showed a satisfactory fit to the Rasch model, with reliability indices greater than 0.70. The dimensions Self-management and Adjustment to the disease did not reach fit to the Rasch model.
Suggestions for improving the LW-CI-PD include a multidimensional and shorter scale with 12 items grouped in three subscales with a simpler response scheme. The final LW-CI-PD Scale version is a reliable scale, with good internal construct validity, that provides Rasch transformed results on linear metric scale.
神经科医生在帮助帕金森病（PD）患者的生活过程中发挥着重要作用。《慢性疾病生活量表-帕金森病》（LW-CI-PD）是一种独特的临床可用工具，可评估患者的 PD 生活状况。本研究的目的是根据 Rasch 模型分析 LW-CI-PD 的特性。
在来自四个拉丁美洲国家和西班牙的 324 名帕金森病患者中进行了一项开放、国际性、横断面研究。使用 Rasch 分析对 LW-CI-PD 的心理测量特性进行了测试：对 Rasch 模型的拟合、项目局部独立性、单维性、可靠性以及按年龄和性别进行的差异项目功能。
原始的 LW-CI-PD 不符合 Rasch 模型。出现的修改包括简化响应量表和删除不拟合项目，接受、应对和整合维度与 Rasch 模型拟合良好，可靠性指数大于 0.70。自我管理和疾病适应维度不符合 Rasch 模型。
改进 LW-CI-PD 的建议包括多维且较短的量表，有 12 个项目分为三个子量表，具有更简单的响应方案。最终的 LW-CI-PD 量表版本是一个可靠的量表，具有良好的内部结构效度，可提供 Rasch 转换的线性度量尺度结果。
